Evidence map›Paper›PMID 41640620›Full record

ArticleCrohn's & colitis 3602026

Patients' attitudes to disease prevention in inflammatory bowel disease: a US-based survey.

Mary Harkins-Schwarz, Catarina Bravo, Manasi Agarawal, Jean Frederic Colombel, Ryan Ungaro, Laura Wingate, Joana Torres, Alan Moss

Erratum issuedAbstract read
In one paragraph

Article in Crohn's & colitis 360, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. An erratum has been issued. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

5 · Who and what money

Authors and funding

8 authors.

Mary Harkins-SchwarzCrohn's & Colitis Foundation, New York, NY, United States.ORCID https://orcid.org/0000-0002-4521-290X
Catarina BravoDivision of Gastroenterology, Hospital Beatriz Ângelo, Loures, Portugal.ORCID https://orcid.org/0000-0002-6675-0758
Manasi AgarawalDr Henry D. Janowitz Division of Gastroenterology, Icahn School of Medicine at Mount Sinai, New York, NY, United States.ORCID https://orcid.org/0000-0003-4729-1485
Jean Frederic ColombelDr Henry D. Janowitz Division of Gastroenterology, Icahn School of Medicine at Mount Sinai, New York, NY, United States.ORCID https://orcid.org/0000-0001-6472-249X
Ryan UngaroDivision of Gastroenterology, Icahn School of Medicine at Mount Sinai, New York, NY, United States.ORCID https://orcid.org/0000-0001-8687-3758
Laura WingateCrohn's & Colitis Foundation, New York, NY, United States.
Joana TorresDivision of Gastroenterology, Hospital Beatriz Ângelo, Loures, Portugal.ORCID https://orcid.org/0000-0003-2895-5821
Alan MossCrohn's & Colitis Foundation, New York, NY, United States.ORCID https://orcid.org/0000-0003-0179-5477

Funding

Early-life Risk Factors for Inflammatory Bowel DiseaseK23DK129762 · NIDDK · ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI · PI AGRAWAL, MANASI · 2021 to 2025
$951k
NIDDK NIH HHS K23 DK129762
6 · The paper itself

Abstract

Background: Recent advances in biomarkers have identified at-risk cohorts for inflammatory bowel disease (IBD), and potential interception strategies to prevent disease onset are in progress. We sought to understand patient and family members' views on IBD prevention, as they are key stakeholders in future adoption of prevention recommendations. Methods: A workgroup of patient advocacy organizations and researchers adapted a survey for completion by the IBD community residing in the United States. All responses were anonymous. Descriptive results, and comparisons, were undertaken of pooled responses. Results: One thousand five hundred forty-five respondents completed the survey. Most respondents (93%, Conclusions: Most people affected by IBD in the United States agree with taking proactive measures to prevent IBD. A lifestyle intervention (diet, exercise) is favored over a pharmaceutical approach by these respondents. Relationship to IBD did not influence the magnitude of the agreement.

Indexed as

benefitdiagnosisfirst-degree relative (FDR)inflammatory bowel disease (IBD)preventionriskscreeningtreatment

Identifiers

PMID41640620
PMCPMC12865844

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.