ArticleBMC research notes2026
Voluntary thalassemia screening: behaviours and constructs among youths from a thalassemia hot spot in Sri Lanka.
Article in BMC research notes, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
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Abstract
objectivesThis study aimed to explore the behavioural constructs influencing voluntary thalassemia screening among youth in Anuradhapura, a district with a high prevalence of beta thalassemia trait in Sri Lanka. A descriptive cross-sectional study was conducted among the vocational training students in the district. A self-completed questionnaire was administered to all the eligible, consenting participants.
resultsAmong 202 participants (ages 18-43), 7.9% (n=15) had undergone thalassaemia screening, and 5.9% (n=12) were aware of the local walk-in screening programme. 97.4% did not perceive themselves at risk of having thalassaemia trait. Of the 93 respondents (49.2%), 49 (26.5%) indicated that they would likely undergo premarital screening, but only 82 (45.6%) would inquire about their partner’s thalassaemia status if they themselves had thalassaemia trait. Misconceptions regarding thalassaemia (curability and perceived stigma), a pragmatic approach, and uncertainty were the three themes identified by analysing answers to the open-ended questions on the potential course of action if one's partner was identified as having a thalassaemia trait. The study highlights low awareness, poor perceived susceptibility, and stigma regarding thalassemia trait among youth in a high-risk region. A shift toward universally offered, decentralised screening, such as mandatory premarital or school-based programs, may enhance the uptake of thalassaemia screening.
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