Evidence map›Paper›PMID 41635740›Full record

Reviewnpj digital public health2026

Pragmatic lessons for harnessing social media for health research through digital data donation post-API access.

Leo Thorbecke, Anish K Agarwal, Sharath Chandra Guntuku

Abstract readReview
In one paragraph

Review in npj digital public health, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors.

Leo ThorbeckeDepartment of Computer and Information Science, University of Pennsylvania, Philadelphia, PA USA.
Anish K AgarwalCenter for Insights to Outcomes, University of Pennsylvania, Philadelphia, PA USA.
Sharath Chandra GuntukuDepartment of Computer and Information Science, University of Pennsylvania, Philadelphia, PA USA.

Funding

Investigating and identifying the heterogeneity in COVID-19 misinformation exposure on social media among Black and Rural communities to inform precision public health messagingR01MD018340 · NIMHD · UNIVERSITY OF PENNSYLVANIA · PI GUNTUKU, SHARATH CHANDRA · 2022 to 2024
$2.4M
NIMHD NIH HHS R01 MD018340
6 · The paper itself

Abstract

Social media offers a real-time, ecological, and large-scale data source for health research. Platforms are increasingly restricting access, posing a threat to the future of social media-based health research. We describe two challenges with this data: rapidly changing platforms, which affect use and user behavior, and variations in data availability. To address these challenges, we present four pragmatic strategies for accessing and using social media data, focusing on data donation.

Indexed as

Medical researchPublic health

Identifiers

PMID41635740
PMCPMC12863665

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.