ArticleInternational journal of qualitative studies on health and well-being2026
"Am I My Sibling's Keeper?": the Lived experiences of adult siblings of individuals with Autism Spectrum Disorder in China.
Article in International journal of qualitative studies on health and well-being, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
0 citing papers in PubMed.
No citing paper in PubMed yet.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
2 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundResearch on families of individuals with Autism Spectrum Disorder (ASD) often marginalizes adult neurotypical (NT) siblings, particularly outside of Western contexts.
objectiveThis study aimed to provide an in-depth exploration of the lived experiences of adult NT siblings of individuals with ASD (IWASD) in China.
methodsUsing an Interpretative Phenomenological Analysis (IPA) approach, this study conducted semi-structured in-depth interviews with eight adult NT siblings of IWASD from China. Data were analyzed following IPA procedures.
resultsThe analysis yielded three group experiential themes: 1) the inescapable responsibility within a culture of blood-ties, 2) the struggle between "flesh-and-blood kin" and "spiritual isolation", and 3) finding identity between "fulfilling others" and "losing the self". The findings reveal that participants' lived experience is a dynamic process shaped by cultural responsibility, mediated by a paradoxical relationship, and ultimately characterized by identity negotiation through sacrifice.
conclusionsThe study concludes that in the Chinese context, the experience of adult NT siblings of IWASD dialectically unifies risk (e.g., ceded ideals) and resilience (e.g., pride as family stabilizer) under the core tenet of "sacrificing for the family". This offers a culturally centered, integrative perspective that supplements the dichotomous risk-resilience discussion in existing literature.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.