ArticleInternational journal of developmental disabilities2026
Navigating the social and healthcare sector: experiences and perspectives of ethnic minority family members/designated care givers of individuals with developmental disorders within the social and healthcare systems.
Article in International journal of developmental disabilities, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
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Abstract
Objectives: There is an abundance of literature on the experiences of individuals with developmental disorders while navigating the social and healthcare sector but there is little literature investigating the experiences of ethnic minority family members/caregivers while navigating the social and healthcare sector. The aim of the present study was to investigate and understand the lived experiences of ethnic minority family members/caregivers whilst navigating the social and healthcare filling a gap in the research literature. Methods: Semi-structured Interviews were conducted with three ethnic minority family members/caregivers of individuals with developmental disorders. Interviews were analysed using Interpretive Phenomenological Analysis. Analysis revealed five master themes relating to their experiences: barriers to support, inadequate support, onus of care, equality and not equity, and collective culture of support. Results: Family members/caregivers reported that several factors impacted their experience of the social and healthcare sector including barriers to support, inadequate support, onus of care, and a principle of equality and not equity. However, a collective culture of support amongst family members/care givers provided respite and support in their role as caregivers. Conclusions: The present study provided an insight into the lived experiences of ethnic minority family members/caregivers navigating the social and healthcare sector leaving room for the topic to be explored further.
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