Evidence map›Paper›PMID 41623284›Full record

ArticleKidney medicine2026

Patient and Physician Perspectives on Use of Patient-Reported Outcome Measures in Non-Dialysis-Dependent CKD Care: A Qualitative Study.

Dipal M Patel, Aurosikha Panda, Sani Fatima, Mary Ann Stephens, Jessica Gotay-Lehmer, Danielle Santiago, Deidra C Crews, Kristin A Riekert

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Article in Kidney medicine, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Dipal M PatelDivision of Nephrology, Department of Medicine, Johns Hopkins University School of Medicine, Baltimore, MD.
Aurosikha PandaHealth Policy and Management, Johns Hopkins Bloomberg School of Public Health, Baltimore, MD.
Sani FatimaDepartment of International Health, Johns Hopkins Bloomberg School of Public Health, Baltimore, MD.
Mary Ann StephensDivision of Nephrology, Department of Medicine, Johns Hopkins University School of Medicine, Baltimore, MD.
Jessica Gotay-LehmerDivision of Nephrology, Department of Medicine, Johns Hopkins University School of Medicine, Baltimore, MD.
Danielle SantiagoDivision of Nephrology, Department of Medicine, Johns Hopkins University School of Medicine, Baltimore, MD.
Deidra C CrewsDivision of Nephrology, Department of Medicine, Johns Hopkins University School of Medicine, Baltimore, MD.
Kristin A RiekertDivision of Pulmonary and Critical Care, Department of Medicine, Johns Hopkins University School of Medicine, Baltimore, MD.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Rationale & Objective: People with non-dialysis-dependent chronic kidney disease (NDD-CKD) can experience substantial symptoms related to physical and mental health. Patient-reported outcome measures (PROMs) assess these aspects of health-related quality of life (QOL). Using the Kidney Disease Symptom Survey as an example to guide discussions, we sought to understand perspectives of patients and nephrology physicians about using PROMs in routine NDD-CKD care. Study Design: Individual semi-structured interviews informed by the Theoretical Domains Framework and associated Capability, Opportunity, Motivation model of behavior change. Setting & Participants: Adults with NDD-CKD and nephrology physicians in the Greater Baltimore-Maryland region. Analytical Approach: Hybrid inductive-deductive thematic analysis. Results: We analyzed interview transcripts from 15 nephrology physicians and 21 people with NDD-CKD. Capability to use PROMs was hindered by limited knowledge and skills of nephrology care teams to act on PROM results and manage symptoms. Opportunity to use PROMs was influenced by concerns surrounding environmental resources, including limited accessibility of PROMs to select patient users and limited time available to physicians to review PROMs data. Participants believed that PROMs could guide person-centered care, but motivation to use them was impeded by the uncertain role of nephrology physicians in assessing and managing symptoms and QOL, as well as concerns that PROMs may capture symptoms unrelated to CKD while also lacking sensitivity for key issues relevant to CKD patient care. Limitations: Impact of clinical practice setting (including the availability of multidisciplinary support) and the views of individual PROM domains was not assessed. Conclusions: Patient and clinician participants recognized the importance of symptom and QOL assessment in nephrology care. However, behavior changes required to integrate PROMs into routine CKD care may be limited by barriers related to the capability, opportunity, and motivation of users. These findings can inform the development of programs which support PROM implementation.

Indexed as

implementationperson-centered carequality of life (QOL)Symptom assessment

Identifiers

PMID41623284
PMCPMC12856438

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.