ArticleWomen's health (London, England)
Impacts of the COVID-19 pandemic on the mental health of Asian women with endometriosis in Canada: A photovoice study.
Article in Women's health (London, England). The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.
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Who cites it
1 citing paper in PubMed.
- Developing a Trauma-Informed Social Media Campaign to Disseminate Endometriosis-Specific Qualitative Art-Based Research Findings: Tutorial.Journal of medical Internet research · 2026Article
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Authors and funding
12 authors.
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No grant is acknowledged in the PubMed record.
Abstract
backgroundEndometriosis affects approximately 190 million people globally and 2 million in Canada. Experiences of endometriosis can profoundly impact all aspects of life, including physical, mental, and financial well-being. The Coronavirus Disease 2019 (COVID-19) pandemic impacted endometriosis care, mental health outcomes, and increased overt racism towards Asian people internationally.
objectivesIn this study, we aimed to describe the impacts of the COVID-19 pandemic on the mental health of Asian women living with endometriosis.
designQualitative, photovoice.
methodsWe used photovoice, an arts-based methodology, and thematic analyses of 22 interviews with East, South, and Southeast Asian cisgender women living in Canada regarding their experiences with endometriosis during the COVID-19 pandemic.
resultsParticipant photographs and narratives conveyed how the COVID-19 pandemic caused disruptions in their lives, which influenced the ways they navigated, managed, and coped with endometriosis symptoms and, ultimately, their mental health. Some disruptions were exacerbated during the COVID-19 pandemic and impacted mental health, including worsening of and inability to manage symptoms as usual, deepening isolation and disconnection from self and society, and turbulent and transformational experiences in interpersonal relationships. Other disruptions were unrelated to the COVID-19 pandemic, including endometriosis invisibility and invalidation, the burden of necessary overplanning, and the complexities of grappling with uncertain fertility. Participants commonly described experiencing feelings of guilt, uncertainty, lack of control, fear, hopelessness, grief, anxiety, and depression.
conclusionThe COVID-19 pandemic exacerbated disruptions affecting the mental health of participants, disruptions unrelated to COVID-19 remained in participants' lives. Considering the latter was particularly impactful on the mental health of participants as these disruptions existed prior to - and would continue beyond - the COVID-19 pandemic.
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