Evidence map›Paper›PMID 41618204›Full record

ArticleBMC geriatrics2026

The Palliative Aged Care Outcomes Program (PACOP): establishing a national framework to improve palliative care in long-term care facilities for older people.

Claire E Johnson, Yunyun Dai, Laura Bryce, Natalie Joseph, Bronwyn Arthur, Kaitlyn Thorne, Janelle White, Alanna Connolly, Kathy Eagar Am

Abstract read
In one paragraph

Article in BMC geriatrics, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Claire E JohnsonPalliative Aged Care Outcome Program (PACOP), Australasian Health Outcomes Consortium (AHOC), Faculty of Science, Medicine and Health, University of Wollongong, Wollongong, NSW, Australia. jclaire@uow.edu.au.ORCID 0000-0001-9190-8441
Yunyun DaiPalliative Aged Care Outcome Program (PACOP), Australasian Health Outcomes Consortium (AHOC), Faculty of Science, Medicine and Health, University of Wollongong, Wollongong, NSW, Australia.
Laura BrycePalliative Aged Care Outcome Program (PACOP), Australasian Health Outcomes Consortium (AHOC), Faculty of Science, Medicine and Health, University of Wollongong, Wollongong, NSW, Australia.
Natalie JosephPalliative Aged Care Outcome Program (PACOP), Australasian Health Outcomes Consortium (AHOC), Faculty of Science, Medicine and Health, University of Wollongong, Wollongong, NSW, Australia.
Bronwyn ArthurPalliative Aged Care Outcome Program (PACOP), Australasian Health Outcomes Consortium (AHOC), Faculty of Science, Medicine and Health, University of Wollongong, Wollongong, NSW, Australia.
Kaitlyn ThornePalliative Aged Care Outcome Program (PACOP), Australasian Health Outcomes Consortium (AHOC), Faculty of Science, Medicine and Health, University of Wollongong, Wollongong, NSW, Australia.
Janelle WhitePalliative Aged Care Outcome Program (PACOP), Australasian Health Outcomes Consortium (AHOC), Faculty of Science, Medicine and Health, University of Wollongong, Wollongong, NSW, Australia.
Alanna ConnollyIllawarra Shoalhaven Local Health District, Wollongong, NSW, Australia.
Kathy Eagar AmFaculty of Health, Queensland University of Technology, Brisbane, QLD, Australia.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundWith an aging population worldwide, many countries face increasing challenges in delivering quality palliative care in long-term care facilities for older people (LTCFs). In Australia, a Royal Commission into Quality and safety of Aged Care in 2021 highlighted significant gaps in this field. In response, the Palliative Aged Care Outcomes Program (PACOP), a person-centred outcomes framework, was developed to address gaps in identification, assessment and management of palliative care needs in LTCFs.

objectiveTo present the development, implementation and early process evaluation of PACOP.

designA cross-sectional mixed-methods study with embedded qualitative open-ended questions.

methodsPACOP was co-designed with sector stakeholders and informed by insights from the Palliative Care Outcomes Collaboration (PCOC)-Wicking trial. Launched in 2022, it comprises two key components: the Profile and Outcomes Collections, supported by national benchmarks, improvement facilitators, training, data and IT infrastructure. A process evaluation, guided by Normalisation Process Theory (NPT), used the NoMAD instrument and open-ended questions to explore healthcare workers’ experiences of the PACOP implementation.

resultsBy June 2025, 440 of 2,622 (16.8%) LTCFs in Australia participated in PACOP. Key facilitators included organizational buy-in, leadership support, the train-the-trainer model and improvement facilitators. Participants reported that PACOP improved early identification of residents’ palliative care needs, supported structured care planning and informed service improvement. However, challenges such as workforce instability, inexperienced staff and limited IT integration were identified.

conclusionPACOP has achieved substantial uptake and early signs of successful implementation in Australian LTCFs. Continued investment in organizational systems change, tailored training, digital integration, along with responsive benchmarking and feedback mechanisms, are essential to sustaining its implementation and enhancing palliative care quality in LTCFs.

Indexed as

Homes for the AgedLong-Term CareNursing HomesPalliative CareAgedAustraliaCross-Sectional StudiesFemaleHumansMaleQuality ImprovementBenchmarkingLong-term care facilitiesNursing homesPalliative aged care outcomes program (PACOP)Person-centred outcome measurementsPrimary palliative careResidential aged care homes

Identifiers

PMID41618204
PMCPMC12951925

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LicenceCC BY-NC-ND
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.