Evidence map›Paper›PMID 41617403›Full record

ArticleJournal of the American Board of Family Medicine : JABFM2026

Evaluation of the Need for Comprehensive Care for Patients with Cystic Fibrosis.

Kendall Kolk, Douglas B Hornick, Tahuanty Pena, Brittany A Wright

Abstract read
In one paragraph

Article in Journal of the American Board of Family Medicine : JABFM, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Kendall KolkFrom the University of Iowa Health Care, Iowa City, IA (KK, DBH, TP, BAW); University of California, San Diego Skaggs School of Pharmacy and Pharmaceutical Sciences, San Diego, (BAW) (current institution).
Douglas B HornickFrom the University of Iowa Health Care, Iowa City, IA (KK, DBH, TP, BAW); University of California, San Diego Skaggs School of Pharmacy and Pharmaceutical Sciences, San Diego, (BAW) (current institution).
Tahuanty PenaFrom the University of Iowa Health Care, Iowa City, IA (KK, DBH, TP, BAW); University of California, San Diego Skaggs School of Pharmacy and Pharmaceutical Sciences, San Diego, (BAW) (current institution).
Brittany A WrightFrom the University of Iowa Health Care, Iowa City, IA (KK, DBH, TP, BAW); University of California, San Diego Skaggs School of Pharmacy and Pharmaceutical Sciences, San Diego, (BAW) (current institution). brwright@health.ucsd.edu.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

introductionCystic fibrosis transmembrane conductance regulator (CFTR) modulators have revolutionized care for people with cystic fibrosis (pwCF) by improving quality of life and extending life spans. These factors support the need for pwCF to establish care with a Primary Care Provider (PCP). It is currently unclear how many adult pwCF routinely interact with a PCP.

methodsThis IRB approved, retrospective study included patients over 18 years old, seen in the adult Cystic fibrosis (CF) clinic, who were prescribed elexacaftor/tezacaftor/ivacaftor (ETI) between 8/31/2022 and 8/31/2023 at University of Iowa Health Care. The primary outcome of the study was to determine the percentage of pwCF with a PCP designated as a member of their care team in the electronic medical record (EMR). The secondary outcomes determined the percentage of pwCF who completed preventative health screenings for comorbid conditions and received appropriate cancer screenings and immunizations.

resultsOf the 115 included patients, 60% (69/115) had a PCP identified in the EMR. PwCF have uncontrolled blood pressure regardless of whether they have a PCP identified in the EMR (76.5%) or not (78.3%). Rates of influenza (p=0.006) and pneumococcal (p=0.006) vaccinations were significantly lower for pwCF without a PCP. DISCUSSION: There is a gap in healthcare for pwCF, especially for those who do not routinely interact with a PCP. CF clinicians may not be up to date on primary care management and PCPs may not be comfortable with treating patients with a high acuity chronic condition. PCPs should be better integrated into the CF care team to ensure pwCF are receiving comprehensive care.

Indexed as

Comprehensive Health CareCystic FibrosisPrimary Health CareAdultAminophenolsBenzodioxolesDrug CombinationsElectronic Health RecordsFemaleHumansIndolesIowaMalePyrazolesPyridinesPyrrolidinesAminophenolsBenzodioxolesDrug CombinationselexacaftorIndolesPyrazolesPyridinesPyrrolidinesQuinolonestezacaftor, ivacaftor drug combinationCare CoordinationChronic DiseaseContinuity of CareCystic FibrosisMultidisciplinary Care TeamPatient Care TeamPreventive MedicinePrimary Health CarePulmonary MedicineScreening

Identifiers

PMID41617403
PMCPMC12978780

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.