Evidence map›Paper›PMID 41615544›Full record

ArticleJournal of patient-reported outcomes2026

Living with chronic rhinosinusitis with nasal polyposis (CRSwNP): an experience to amplify Italian patients' voices.

L Bernardi, M R Mollo, C Sartor, S Barbaglia, D Gargano, F Anastasi, G Camiciottoli, C Allegrini, C Caruso, I Baiardini and 1 more

Abstract read
In one paragraph

Article in Journal of patient-reported outcomes, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors.

L BernardiGSK Medical Department, Viale dell'Agricoltura, 7, Verona, Italy. lara.x.bernardi@gsk.com.ORCID http://orcid.org/0000-0001-7507-9321
M R MolloGSK Medical Department, Viale dell'Agricoltura, 7, Verona, Italy.
C SartorGSK Medical Department, Viale dell'Agricoltura, 7, Verona, Italy.
S BarbagliaNational Patient Association Respiriamo Insieme aps, Via Niccolò Tommaseo 94, 35131, Padova, Italia.
D GarganoU.O. Allergologia e Immunologia Clinica, Azienda Ospedaliera di Rilievo Nazionale e di Alta Specialità San Giuseppe Moscati, 83100, Avellino, Italia.
F AnastasiUnit of Otorhinolaryngology, Medical and Surgical Rhinology, Ospedale San Giovanni Evangelista, Tivoli, Italy.
G CamiciottoliScienze Biomediche Sperimentali e Cliniche "Mario Serio", Università degli Studi di Firenze, P.za di San Marco, 4, Firenze, Italia.
C AllegriniPneumologia e Fisiopatologia Toraco-Polmonare, Azienda Ospedaliera Unviersitaria Careggi, Largo Giovanni Alessandro Brambilla, 3, Firenze, Italia.
C CarusoAllergy and Clinical Immunology Unit, Fondazione Policlinico A. Gemelli IRCCS, Largo Agostino Gemelli, 8, Roma, Italia.
I BaiardiniDepartment of Health and Life Science, European University of Rome, Roma, Italia.
L CappellariGSK Medical Department, Viale dell'Agricoltura, 7, Verona, Italy.

Funding

GlaxoSmithKline GlaxoSmithKline
6 · The paper itself

Abstract

backgroundChronic rhinosinusitis with nasal polyps (CRSwNP) significantly impacts patients’ quality of life, yet there is a notable lack of studies addressing the disease burden and patients’ perspectives compared to other conditions such as asthma and allergies. This project aimed to gather insights from both patients living with CRSwNP and healthcare professionals (HCPs) involved in its management, with the goal of better understanding their experiences and identifying shared unmet needs and expectations.

methodTwelve CRSwNP patients participated in2 focus groups (open-ended questions) facilitated by a moderator. The insights gathered were presented to an expert board comprising HCPs and expert patients, both of whom are members of the PAG. Patients involved in the expert board enriched the qualitative data collection providing narratives of their personal experience.

resultsA total of 24 patients with CRSwNP participated in the analysis, 124 qualitative insights, distinct observations, comments or experiences related to their conditions, were gathered. The main priorities expressed were to decrease invasive procedures; avoid chronicity/reduce relapses; and create more opportunities for patients to be heard.

conclusionParticipants expressed expectations that extended beyond disease management, emphasizing the importance of their active involvement in shaping healthcare strategies. This project highlights the critical need to actively listen to the experiences and unmet needs of both patients and HCPs, integrating their perspectives into healthcare strategies to deliver practical, patient-centered improvements in the management of CRSwNP.

Indexed as

Nasal PolypsQuality of LifeRhinitisRhinosinusitisSinusitisAdultAgedChronic DiseaseFemaleFocus GroupsHumansItalyMaleMiddle AgedQualitative ResearchChronic rhinosinusitis with nasal polyposisPatient advocacyPatient empowermentPatient engagement

Identifiers

PMID41615544
PMCPMC12901749

What OpenQuestion holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.