Evidence map›Paper›PMID 41605600›Full record

ArticleBMJ open2026

Patient engagement in digital health: a preliminary observation on user-centred and stakeholder feedback.

Kareem Abdelkader, Christopher F Barile, Ndey Isatou Jobe, Nathan Huey, Zacharia Isaac, Danielle Sarno, Jennifer Kurz, Daniel S Barron

Abstract read
In one paragraph

Article in BMJ open, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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0citing papers in PubMed
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1 · What the graph read from it

What it found

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2 · The registry

The trial behind it

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3 · Its place in the literature

Who cites it

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No citing paper in PubMed yet.

4 · The record

Corrections and comments

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5 · Who and what money

Authors and funding

8 authors.

Kareem AbdelkaderSpaulding Rehabilitation Hospital Boston, Charlestown, Massachusetts, USA.
Christopher F BarileMass Eye and Ear, Boston, Massachusetts, USA.
Ndey Isatou JobeSpaulding Rehabilitation Hospital Boston, Charlestown, Massachusetts, USA.
Nathan HueyMass Eye and Ear, Boston, Massachusetts, USA.
Zacharia IsaacSpaulding Rehabilitation Hospital Boston, Charlestown, Massachusetts, USA.
Danielle SarnoSpaulding Rehabilitation Hospital Boston, Charlestown, Massachusetts, USA.
Jennifer KurzSpaulding Rehabilitation Hospital Boston, Charlestown, Massachusetts, USA.
Daniel S BarronSpaulding Rehabilitation Hospital Boston, Charlestown, Massachusetts, USA daniel85barron@gmail.com.ORCID http://orcid.org/0000-0002-0686-6337

Funding

Digital Biomarkers of Movement, Emotional State, and Social Connectedness: clinically integrated tools to improve health equity in older patients with chronic painK01AG078127 · NIA · BRIGHAM AND WOMEN'S HOSPITAL · PI Daniel S. Barron · 2022 to 2026
$926k
NIA NIH HHS K01 AG078127
6 · The paper itself

Abstract

designProspective cohort study

settingIn this pilot study, we recruited patients from a secondary pain clinic in Boston, Massachusetts.

participantsIn this pilot study, we recruited patients from a secondary pain clinic within the Spaulding Rehabilitation network in Boston, Massachusetts, USA. We enrolled 37 patients who initially came in for a clinical visit with the principal investigator of the study. Of the 37 patients, 14 patients who continued to enrol/join after December 2024 received the 'DigitalPulse' to drive engagement.

objectivesTo present a roadmap for our efforts to contextualise engagement in our digital health technology study and showcase our attempts to incorporate an engagement approach inspired by the Method for Program Adaptation through Community Engagement. Building on this, we further incorporated continued feedback and revision beyond the prototype of the user-centred feedback form ('DigitalPulse') to include expanded stakeholders such as clinicians and research assistants.

resultsFrom these patients, we observed that our approach produced highly variable changes in engagement with slight increases at the group level.

conclusionFrom our observations, we have found that it is important to incorporate iterative refinements and expanded stakeholder involvement in designing patient-centred digital health tools to improve engagement. Overall, we report a process to address engagement and emphasise the need for continuous personalisation in digital health interventions.

Indexed as

Digital HealthPatient ParticipationStakeholder ParticipationAdultAgedBostonFeedbackFemaleHumansMaleMiddle AgedPilot ProjectsProspective StudiesPAIN MANAGEMENTPatient ParticipationPatient Preference

Identifiers

PMID41605600
PMCPMC12853557

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.