Evidence map›Paper›PMID 41605516›Full record

ArticlePalliative & supportive care2026

Improving support for family caregivers: A mixed-methods effect evaluation of an organizational intervention.

Hinke E Hoffstädt, Arianne Stoppelenburg, Marcella C Tam, Iris D Hartog, Leti van Bodegom-Vos, Bart J A Mertens, Jenny T van der Steen, Yvette M van der Linden

Abstract read
In one paragraph

Article in Palliative & supportive care, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Hinke E HoffstädtCenter of Expertise in Palliative Care, Leiden University Medical Center, Leiden, The Netherlands.ORCID https://orcid.org/0000-0001-5985-6397
Arianne StoppelenburgCenter of Expertise in Palliative Care, Leiden University Medical Center, Leiden, The Netherlands.
Marcella C TamCenter of Expertise in Palliative Care, Leiden University Medical Center, Leiden, The Netherlands.
Iris D HartogCenter of Expertise in Palliative Care, Leiden University Medical Center, Leiden, The Netherlands.
Leti van Bodegom-VosBiomedical Data Sciences, Medical Decision Making Section, Leiden University Medical Center, Leiden, The Netherlands.
Bart J A MertensMedical Statistics, Biomedical Data Sciences, Leiden University Medical Center, Leiden, The Netherlands.
Jenny T van der SteenPublic Health and Primary Care, Leiden University Medical Center, Leiden, The Netherlands.ORCID https://orcid.org/0000-0002-9063-7501
Yvette M van der LindenCenter of Expertise in Palliative Care, Leiden University Medical Center, Leiden, The Netherlands.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectivesTo evaluate the impact of a tailored organizational intervention on the support for family caregivers.

methodsA convergent mixed-methods study was conducted in 17 organizations (6 hospices, 5 home care organizations, 3 nursing homes, 2 hospitals, 1 transmural organization) between November 2021 and August 2023. The intervention comprised a structured practice improvement trajectory during which each organization conducted a structured workshop to define organization-specific goals to improve their support for family caregivers and to develop an action plan to achieve those goals. The action plan was implemented over 1 year with intermittent evaluations. Pre- and post-intervention surveys were distributed among healthcare professionals (paired) and bereaved family caregivers (non-paired) to assess provided and received support. Data were analyzed with mixed models and regression analyses. Post-intervention focus groups with project team members and final evaluation reports were analyzed with qualitative content analysis.

resultsSurvey respondents were 97 healthcare professionals (83% nursing staff), 123 family caregivers pre-intervention, and 99 family caregivers post-intervention. Only healthcare professionals of home care organizations reported a significant increase in attending to family caregivers' wellbeing and needs (scale 0-20; β = 3.65; 95%CI: 1.33-5.97). Family caregivers' reports of healthcare professionals attending to their wellbeing and needs did not change (scale 0-2; β = 0.17; 95%CI: -0.04-0.38). Across settings, healthcare professionals evaluated the care they provided more positively post-intervention (scale 0-8; β = 0.65, 95%CI: 0.38-0.97). In home care, family caregivers also evaluated care more positively (scale 0-8; β = 2.12; 95%CI: 0.89-3.34). Four focus groups and 17 evaluation reports indicated improvements at 3 levels: the support for family caregivers (increased awareness of healthcare professionals, changes in work processes, more structured support), the healthcare team (more skills, confidence, available tools), and the organization (fostering sustainability). SIGNIFICANCE OF

resultsA tailored organizational intervention can strengthen the support of family caregivers in healthcare organizations.

Indexed as

CaregiversSocial SupportAdultFamily SupportFemaleFocus GroupsHumansMaleMiddle AgedQualitative ResearchSurveys and Questionnairesfamily caregiversfamily supportinterventionmixed-methodsPalliative care

Identifiers

PMID41605516
PMCPMC13166565

What OpenQuestion holds

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LicenceCC BY
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.