ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2026
Post-traumatic growth related to long-term follow up in survivors of childhood cancer: a national qualitative study.
Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
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Abstract
purposeImproved survival rates for childhood cancer have resulted in survivors experiencing increased physical and psychosocial late effects. Post-traumatic growth (PTG) refers to positive psychosocial changes in response to trauma, in this case, cancer diagnosis and treatment. The role of PTG in long-term follow-up care (LTFU) is unknown. The aim of this study was to examine the lived experiences of PTG in survivors of childhood cancer, specifically in the context of LTFU.
methodsWe completed an exploratory qualitative study using patient-oriented research methods. Eligible participants were Canadian adult survivors of childhood cancer, at least 5 years post-diagnosis or 2 years post-treatment. Demographic data were gathered by digital survey and summarized using descriptive statistics. Virtual focus transcripts were analyzed using reflexive thematic analysis.
resultsTwenty-two survivors of childhood cancer (mean age 29.2 years, predominantly female and white) participated across five virtual focus groups, with 4 to 6 participants per group. Four key themes emerged: Life Perspectives, Self-Advocacy/Empowerment, Career Choices, and Sharing the Lived Experience. Participants reported shifts in life outlook and priorities, with many pursuing health-related careers. Self-advocacy skills were gained from their cancer experiences, which were felt to be required in the LTFU setting. Finally, survivors valued and gained meaning from sharing their lived experiences.
conclusionThe PTG themes of Self-Advocacy/Empowerment and Sharing the Lived Experience are novel contributions to the literature. PTG may offer an avenue to improve patient engagement and adherence with LTFU, and future interventions should encourage its incorporation.
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