ArticlePublic health genomics2026
What Makes Families SHARE: The Family Communication Environments of Disseminators and Non-Disseminators of Family Cancer History.
Article in Public health genomics, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
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Abstract
introductionFamily cancer history (FCH) provides insight into cancer risk and can guide prevention efforts. Black Americans experience high cancer burden and report several barriers to FCH knowledge due to family communication challenges. Few studies have examined family-level factors that impact FCH communication in Black Americans. This study employed a qualitative design to examine the family communication environments of those who communicated more (i.e., disseminators) versus less or no change (i.e., non-disseminators) about FCH, within the last year.
methodsThis is a secondary data analysis of a larger study that implemented a community education program on how to calculate cancer risk from family history (i.e., Families SHARE). Black Americans (N = 39) participated in community education workshops (N = 12) and discussed family communication environments. A codebook was developed a priori and revised iteratively using a consensus approach. Dedoose qualitative software supported establishing inter-rater reliability (Cohen's kappa = 0.83) and thematic analysis. Participants received USD 50 for workshop completion.
resultsPre-workshop disseminators (n = 14) and non-disseminators (n = 25) averaged 59 years of age, were 50% female, and earned <USD 20,000 per year. Norms related to age, sex, and privacy shaped family communication environments for both groups. Disseminators were marked by stronger relational quality and frequent contact, whereas non-disseminators indicated poorer relational quality and limited information flow throughout the family.
conclusionTheory-driven approaches that address the nuanced family communication environments of black Americans may optimize FCH communication of disseminators and non-disseminators.
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