ArticleClinical practice in pediatric psychology2021
Understanding barriers to transition from pediatric to adult care among young adults with sickle cell disease to develop a transition mentor program.
Article in Clinical practice in pediatric psychology, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.
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Who cites it
7 citing papers in PubMed.
- Feasibility of Medical Student Mentors to Improve Transition in Sickle Cell Disease.Journal of pediatric psychology · 2021Trial
- Exploring the Lived Experiences of Adults With Sickle Cell Disease in Nigeria Using van Manen's Phenomenological Approach.Public health challenges · 2025Article
- Supportive use of digital technologies during transition to adult healthcare for young people with long-term conditions, focusing on Type 1 diabetes mellitus: A scoping review.Journal of child health care : for professionals working with children in the hospital and community · 2025Article
- Review
- Training young adults as community health workers specializing in pediatric to adult health care transition to support emerging adults with sickle cell disease.Health care transitions · 2024Article
- Transition for Adolescents and Young Adults With Sickle Cell Disease in a US Midwest Urban Center: A Multilevel Perspective on Barriers, Facilitators, and Future Directions.Journal of pediatric hematology/oncology · 2022Article
- A scoping review of transition interventions for young adults with sickle cell disease.Pediatric blood & cancer · 2021Article
Corrections and comments
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Authors and funding
10 authors.
Funding
Abstract
Objective: Patients with sickle cell disease require lifelong comprehensive care, necessitating patient compliance with primary care appointments, specialty clinical visits, medications, transfusions, and regular health maintenance. As patients transition from pediatric care to adult care, they are at risk for lapses in care that can result in serious complications, making the period of transition a medically vulnerable time. The goal of this study was to use formative interviews to identify targets for a mentoring intervention to improve transition outcomes. Methods: Ten young adults preparing to transition and 10 young adults within 10 years of their transition (ages 18-30 years) completed a semi-structured interview. Interviews were analyzed using template thematic analysis, with the Social-ecological Model of Adolescent and Young Adult Readiness to Transition (SMART) framework as the a priori thematic framework. Results: Themes were consistent with the SMART framework components. Young adults identified self-advocacy, provider communication, and disease knowledge as important targets for intervention. Participants were receptive to having a medical student as a mentor and also viewed it as an opportunity to educate health professionals. Conclusions: The SMART framework and patient interviews were useful in designing a transition mentor program to meet the needs of patients with sickle cell disease. Future research will evaluate the feasibility of this program.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.