ReviewJHLT open2026
The unsung heroes: A scoping review of the experiences of lung transplant informal caregivers.
Review in JHLT open, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Corrections and comments
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Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Informal caregivers support patients after lung transplantation (LTx). With growing recognition of the multiple demands placed on caregivers, this scoping review aimed to systematically map the literature surrounding informal caregiving experiences after LTx using JBI guidelines. Multiple databases were searched from January 2010 to May 2025 based on a combination of synonyms and controlled vocabulary related to "caregiver" and "lung transplant recipients". A total of 404 records were screened after the removal of duplicates. Among these, 16 sources met the inclusion criteria with 12 (75%) classified as full publications, 3 (19%) peer-reviewed conference abstracts, and 1 poster presentation. Most studies were based in North America (11/16 [69%]) with the remainder from Europe or Australia. Only 19% (3/16) of the sources were published within the past 5 years. There were 7 qualitative studies (44%), 6 quantitative (38%), 2 mixed methods (12%), and 1 literature review. Informal caregivers described a wide variety of challenges ranging from high levels of caregiver burden, psychological and emotional impacts, handling multiple daily practicalities, knowledge deficits, and the need for more support. Positive experiences of the informal caregiver role include positive adjustment, presence of support networks and relationships, improved quality of life, and benefiting from educational support and preparation. Informal caregivers remain an integral resource in supporting patients after LTx. However, most available evidence predates recent advances in transplantation practice-with 80% published before 2020-limiting its current relevance and highlighting the need for further research and targeted interventions to support this population.
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