Evidence map›Paper›PMID 41580868›Full record

ArticleResearch involvement and engagement2026

An adaptive, youth-centred co-design methodology: place-based co-design centring youth and community participation.

Ediane Santana de Lima, Katie Potter, Cristina Preece, Nirandeep Rehill, George Davis, Sophie Bulmer, Kate Allen, Anna March, Tim Hobbs, Peter Fonagy

Abstract read
In one paragraph

Article in Research involvement and engagement, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Ediane Santana de LimaDartington Service Design Lab, Bristol, UK. Ediane.Santana_de_Lima@dartington.org.uk.ORCID http://orcid.org/0009-0004-1523-4181
Katie PotterDartington Service Design Lab, Stoke Gabriel, UK.
Cristina PreeceDartington Service Design Lab, Hereford, UK.ORCID https://orcid.org/0009-0000-7797-3626
Nirandeep RehillUCLPartners and The Department of Primary Care and Population Health, London, UK.ORCID https://orcid.org/0000-0003-4179-0996
George DavisDartington Service Design Lab, Weston-Super-Mare, UK.
Sophie BulmerUCLPartners, London, UK.
Kate AllenUniversity of Exeter, Exeter, UK.ORCID https://orcid.org/0000-0002-0870-7209
Anna MarchUniversity of Exeter, Exeter, UK.ORCID https://orcid.org/0000-0002-1811-6090
Tim HobbsCEO Dartington Service Design Lab and Visiting Professor at University College London, Totnes, UK.
Peter FonagyDivision of Psychology and Language Sciences at University College London (UCL), Child and Family Programme at the Menninger Department of Psychiatry and Behavioural Sciences at Baylor College of Medicine, London, UK.ORCID https://orcid.org/0000-0003-0229-0091

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundCo-design approaches are increasingly used in efforts to address complex challenges, such as adolescent mental health. Benefits of these approaches are multifaceted and include strategies that better reflect local perspectives and needs, as well as the potential for improved outcomes for those involved. However, the literature has highlighted challenges and unintended consequences of co-design, such as issues with inclusivity and undue burden being placed on participants. This paper examines the methods used in the ‘Deeper Discovery and Co-design phase’ of Kailo, a place-based research and design initiative aimed at tackling the social determinants of children’s and young people’s (CYP) mental health in their local communities.

methodsOver approximately nine months, a co-design approach was used across two pilot sites. This involved more than 69 workshops and several ad hoc engagements with CYP and other community members. The goal was to explore structural challenges and develop strategies to address CYP mental health and wellbeing in their local context. The co-design work also aimed to bring together community knowledge and expertise, systems mapping and academic evidence.

resultsOver 300 local CYP, community members, professionals and practitioners participated or contributed to Kailo’s Deeper Discovery phase across the two pilot sites, via group sessions, individual feedback or surveys. The study identified key barriers (e.g. logistical constraints, limitations in accessibility of processes and participation, safeguarding and participant wellbeing concerns) and enablers (e.g. flexible and accessible participation, inclusive and adaptive facilitation, and participation and influence) that shaped conditions for implementation. Moreover, it explored the requirements and tensions for methodological implementation whilst maintaining a flexible and adaptive approach, centring CYP needs and voices, and integrating different methods into the co-design process.

conclusionsThe Kailo programme prioritised the contributions of CYP and their communities, aiming to foster inclusive and diverse engagement through a distinctive, adaptive, youth-centred approach. This paper outlines the co-design methodology used to support the development of locally relevant strategies addressing the social determinants of mental health. However, balancing flexibility and adaptability and centring CYP needs, voices and agency, whilst maintaining a focus on broader structural issues, remains a challenge.

Identifiers

PMID41580868
PMCPMC12994241

What OpenQuestion holds

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LicenceCC BY
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.