Evidence map›Paper›PMID 41579073›Full record

ArticleThe American journal of hospice & palliative care2026

Positive Experiences of Seriously ill Lesbian, Gay, Bisexual, Transgender, and Queer Persons and Their Partners With Healthcare Providers: Project Respect.

Cathy Berkman, Gary L Stein, Noelle Marie Javier, Kimberly D Acquaviva, David Godfrey, Sean O'Mahony, Shail Maingi, Carey Candrian, Christian González-Rivera, Imani Woody and 1 more

Abstract read
In one paragraph

Article in The American journal of hospice & palliative care, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors.

Cathy BerkmanGraduate School of Social Service, Fordham University, New York, NY, USA.ORCID 0000-0002-1776-3931
Gary L SteinWurzweiler School of Social Work, Yeshiva University, New York, NY, USA.
Noelle Marie JavierBrookdale Department of Geriatrics and Palliative Medicine, Icahn School of Medicine at Mount Sinai, New York, NY, USA.
Kimberly D AcquavivaSchool of Nursing, University of Virginia, Charlottesville, VA, USA.
David GodfreyCommission on Law and Aging, American Bar Association, Washington, DC, USA (Retired).
Sean O'MahonyDivision of Palliative Medicine, University of Texas Medical Branch at Galveston, Galveston, TX, USA.
Shail MaingiDana-Farber Cancer Institute, South Weymouth, MA, USA.
Carey CandrianDepartment of Internal Medicine, University of Colorado School of Medicine, Aurora, CO, USA.
Christian González-RiveraBrookdale Center for Healthy Aging, CUNY Hunter College, New York, NY, USA.
Imani WoodyMary's House for Older Adults, Inc., Washington, DC, USA.
William E RosaDepartment of Psychiatry & Behavioral Sciences, Memorial Sloan Kettering Cancer Center, New York, NY, USA.ORCID 0000-0002-0680-8911

Funding

X-RAY CRYSTALLOGRAPHYP30CA008748 · NCI · SLOAN-KETTERING INSTITUTE FOR CANCER RES · PI SELWYN M VICKERS · 1985 to 2026
$347.4M
NCI NIH HHS P30 CA008748
6 · The paper itself

Abstract

BackgroundThere is strong evidence of discriminatory healthcare to seriously ill lesbian, gay, bisexual, transgender, and queer people, plus other sexual and gender identities (LGBTQ+).AimThe aim is to describe positive, affirming, and culturally competent healthcare to seriously ill LGBTQ+ patients and their spouses, partners, and widows.DesignThe authors conducted a cross-sectional study using an online survey. The data for this report are the responses to three open-ended questions describing care that was respectful, affirming, and competent provided the data.Settings/SubjectsThere were 290 LGBTQ+ persons with a serious illness and their spouses, partners, and widows, recruited from a wide range of organizations in the U.S. that serve LGBTQ+ communities.ResultsThere were numerous reports of respectful, affirming, and competent care, including: healthcare providers who were open about discussing a respondent's LGBTQ+ identity and their specific health concerns; intake and assessment forms that included pre-specified choices for sexual orientations and gender identities; using correct names, pronouns, and gender; healthcare providers who identified as LGBTQ+ or signaled being an ally; and treating spouses, partners, and widows respectfully and including them in decision-making.ConclusionCulturally competent care is important for all individuals with a serious illness, particularly for those who identify as LGBTQ+. Such care builds trust, minimizes misunderstandings, and encourages meaningful communication with patients, thus increasing treatment effectiveness and patient satisfaction. Healthcare providers and healthcare systems are encouraged to become informed about caring for LGBTQ+ patients. Technology and inclusive intake forms and assessments may also contribute to making patients feel validated by using questionnaires that include questions about sexual orientation and gender identity. More can be done to educate healthcare professionals to provide culturally competent care to LGBTQ+ people and there are models for such training.

Indexed as

gayhealthcare providerslesbianpalliative careserious illnesstrainingtransgender

Identifiers

PMID41579073
PMCPMC13463599

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.