Evidence map›Paper›PMID 41579038›Full record

SynthesisAge and ageing2026

From bubbling to boiling over: a meta-ethnography of the process towards and during crisis from the perspectives of persons living with dementia, informal carers and healthcare professionals.

Stella Thissen, Eefje Sizoo, Martin Smalbrugge, Debby L Gerritsen, Marieke Perry

Abstract readSystematic Review
In one paragraph

Synthesis in Age and ageing, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Stella ThissenUniversity Knowledge Network for Older Adult Care Nijmegen (UKON), Department of Primary and Community Care, Radboud University Medical Center, Nijmegen, GE, Netherlands.ORCID 0009-0009-2736-7375
Eefje SizooAgeing and Later Life, Amsterdam Public Health Research Institute, Amsterdam, North Holland, Netherlands.ORCID 0000-0001-5994-0652
Martin SmalbruggeAgeing and Later Life, Amsterdam Public Health Research Institute, Amsterdam, North Holland, Netherlands.ORCID 0000-0003-0538-4843
Debby L GerritsenUniversity Knowledge Network for Older Adult Care Nijmegen (UKON), Department of Primary and Community Care, Radboud University Medical Center, Nijmegen, GE, Netherlands.ORCID 0000-0002-3356-0237
Marieke PerryUniversity Knowledge Network for Older Adult Care Nijmegen (UKON), Department of Primary and Community Care, Radboud University Medical Center, Nijmegen, GE, Netherlands.ORCID 0000-0003-0675-9678

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundCrisis admissions in dementia care are increasing, often leading to negative outcomes for people with dementia, their informal caregivers and healthcare professionals. Crises arise from a complex interplay of health, behavioural, social and environmental factors.

objectiveThis systematic review of qualitative studies, using a meta-ethnographic approach, explores the process leading up to and unfolding during crises.

methodsFive databases were searched for studies published between January 2000 and September 2023. Study selection involved AI-assisted screening (ASReview), followed by manual review and quality appraisal using the Joanna Briggs Institute checklist. Data synthesis was guided by the Strauss and Corbin qualitative framework.

resultsNineteen studies, mainly reflecting the perspectives of informal caregivers and healthcare professionals, were included in the analysis. The core phenomenon identified is the mechanism in which professionals, persons with dementia and informal caregivers are constantly balancing between safety and autonomy, triggered by disruptions to a previously stable situation. Two contextual factors influence this process: a proactive, collaborative attitude among healthcare professionals, and a healthcare system that often acts as a push system, limiting flexibility and responsiveness.

conclusionsThese findings highlight the need for collaborative care approaches to prevent or manage crises more effectively, offering valuable insights for practice and policy improvements.

Indexed as

CaregiversDementiaHealth PersonnelAnthropology, CulturalAttitude of Health PersonnelHumansQualitative Researchcrisisdementiaemergencyhealthcare professionalsinformal caregiversolder peoplequalitative research

Identifiers

PMID41579038
PMCPMC13156077

What OpenQuestion holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.