ArticleHealth expectations : an international journal of public participation in health care and health policy2026
Turning to Service Users for the Understanding of Current and Future Mental Health Services in the Development Process of Research and Practice: A Qualitative Study.
Article in Health expectations : an international journal of public participation in health care and health policy, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.
What it found
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
4 citing papers in PubMed.
- Connect Coordination Victoria and the Establishment of a State-Wide Network of Family Carer Mental Health and Well-being Connect Centres: Family Carer Lived Experience Leadership Through Online Community Co-Design, Communities of Practice and Power Sharing.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Turning to Service Users for the Understanding of Current and Future Mental Health Services in the Development Process of Research and Practice: A Qualitative Study.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Putting Lived Experience at the Centre: A Critical Review of Multidisciplinary, Person-Centred Mental Health Care.Journal of multidisciplinary healthcare · 2026Review
- Building Care in the Heart of the Moment - Exploring the Process of Collaboration for the Making of Flexible Assertive Community Treatment.International journal of integrated careArticle
Corrections and comments
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Authors and funding
6 authors.
Funding
Abstract
backgroundA person-centred and recovery-oriented approach is an integral part of modern mental health services founded on the experiential knowledge of service users. Their reflections as experts, grounded in their unique experience as service users, play a significant role in developing and improving the existing care. Experiential knowledge is therefore a means to enhance the relevance of research, inform the development of care, and bridge research and practice.
aimTo understand service users' experiences of their current mental health services and explore reflections on the Flexible Assertive Community Treatment (FACT) model and its role in future practice.
methodsA total of 17 experts participated in individual and dyadic in-depth interviews. A reflexive thematic analysis was performed on the participants' experiences of current mental health services and on their reflections on a vignette describing an integrative, recovery-oriented care and support model-FACT.
resultsThe analysis resulted in three themes. The first theme, 'Losing value and credibility as a person when becoming a service user', reflected participants' experiences of being reduced to the signs and symptoms of their mental health problems. The second theme, 'Navigating through the mental health maze', describes participants view on the current mental health services, while the last theme, 'Involving service users in their care and support would be empowering', holds participants' views on the importance of greater involvement in future service design and delivery.
conclusionsThese results underscore the necessity for enhanced collaboration to empower and provide inclusive, tailored care and support, which the participants emphasised as essential for the future of mental health services. The participants reflected on certain structural concepts, such as hierarchy, caring culture, and financial strains, prior to the implementation of FACT, which need to be addressed before an adaptation of integrative, recovery-oriented care and support models. PUBLIC AND SERVICE USER CONTRIBUTION: The study planning and process involved stakeholders, including user organisations, Swedish Partnership for Mental Health (NSPH), Skåne and their sister organisation LIBRA Skåne, as well as managers and professionals of mental health services. One of the authors has own experience of mental illness and contributed greatly to the data analysis and the finalising of the manuscript, and two authors have experience as relatives.
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Registered trials
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