ArticleWestern journal of nursing research2026
A Scoping Review of Dementia Research Using ALZConnected Forum Data.
Article in Western journal of nursing research, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
0 citing papers in PubMed.
No citing paper in PubMed yet.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors.
Funding
Abstract
backgroundDementia is a rapidly growing global health challenge, affecting an estimated 57 million people worldwide and placing escalating demands on individuals living with the condition and those who care for them. As needs rise, many turn to digital platforms like ALZConnected, a moderated online forum offering space for sharing, support, and connection. While its use in research is expanding, to our knowledge, no scoping review has yet examined how ALZConnected has been leveraged as a data source in dementia-related studies.
objectiveThis scoping review aimed to identify and describe published studies that used the ALZConnected forum data to explore caregiver and persons living with dementia experiences, research approaches applied, and areas of focus.
methodA systematic search of peer-reviewed journal articles, dissertations, and preprints published between 2011 and 2025 was conducted following Preferred Reporting Items for Systematic Reviews and Meta-Analyses Extension for Scoping Reviews reporting guidelines. Eligible studies analyzed ALZConnected content, centered on dementia caregivers or persons living with dementia, and reported original research. A total of 163 records were screened, with 28 studies included.
resultsStudies applied qualitative and computational methods to explore caregiver emotional well-being, information-seeking, systemic challenges, peer support dynamics, and technological applications. ALZConnected was also used to model sentiment, develop algorithms, and analyze caregiver communication. A smaller number of studies examined posts authored by people living with dementia.
conclusionsALZConnected provides a rich, naturalistic data source for exploring dementia care discussions. Findings highlight its value for nursing research, intervention development, and care planning, particularly in under-resourced settings.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.