Evidence map›Paper›PMID 41573356›Full record

ArticleDigital health

Design and development of 'Helder in Gesprek': A tool to support person-centred communication in memory clinics.

Tanja J de Rijke, Kyra Km Kaijser, Dianne Vasseur, Hilal Tasköprü, Lotte Huisman, Aniek M van Gils, Vera Otten, Carolien Smits, Cynthia S Hofman, Minke Kooistra and 3 more

Abstract read
In one paragraph

Article in Digital health. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

13 authors.

Tanja J de RijkeDepartment of Medical Psychology, Amsterdam UMC Location University of Amsterdam, Amsterdam, The Netherlands.ORCID https://orcid.org/0009-0009-8077-2214
Kyra Km KaijserDepartment of Medical Psychology, Amsterdam UMC Location University of Amsterdam, Amsterdam, The Netherlands.ORCID https://orcid.org/0009-0005-1605-7364
Dianne VasseurVilans, The Dutch National Centre of Expertise for Care and Support, Utrecht, The Netherlands.ORCID https://orcid.org/0000-0003-3929-4897
Hilal TasköprüDepartment of Medical Psychology, Amsterdam UMC Location University of Amsterdam, Amsterdam, The Netherlands.
Lotte HuismanDepartment of Medical Psychology, Amsterdam UMC Location University of Amsterdam, Amsterdam, The Netherlands.
Aniek M van GilsAmsterdam UMC, Location Vrije Universiteit Amsterdam, Alzheimer Center Amsterdam, Amsterdam, The Netherlands.ORCID https://orcid.org/0000-0002-0669-2584
Vera OttenAlzheimer Nederland, Amersfoort, The Netherlands.ORCID https://orcid.org/0009-0002-1010-4164
Carolien SmitsPharos, The Dutch Centre of Expertise on Health Disparities, Utrecht, The Netherlands.
Cynthia S HofmanVilans, The Dutch National Centre of Expertise for Care and Support, Utrecht, The Netherlands.ORCID https://orcid.org/0000-0002-5366-0075
Minke KooistraAlzheimer Nederland, Amersfoort, The Netherlands.ORCID https://orcid.org/0000-0003-0539-374X
Ellen Ma SmetsDepartment of Medical Psychology, Amsterdam UMC Location University of Amsterdam, Amsterdam, The Netherlands.ORCID https://orcid.org/0000-0002-8145-8595
Thomas EngelsmaAmsterdam Public Health Research Institute, Digital Health/Personalised Medicine/Quality of Care/Aging & Later Life, Amsterdam, The Netherlands.ORCID https://orcid.org/0000-0001-8889-1669
Leonie Nc VisserDepartment of Medical Psychology, Amsterdam UMC Location University of Amsterdam, Amsterdam, The Netherlands.ORCID https://orcid.org/0000-0003-3487-7938

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Objective: Person-centred communication in memory clinics is essential, but often not optimal. This study aimed to develop a solution that supports people with cognitive complaints in expressing their needs and preferences during memory clinic consultations. Methods: Following a human-centred design approach, co-researchers (n = 4 people with dementia) identified a problem statement. This problem was confirmed and elaborated upon via a questionnaire (n = 25) and focus group (n = 18) for triangulation purposes, and in co-design sessions with people with cognitive complaints (n = 3), care partners (n = 2), and clinicians (n = 3). These sessions informed prototype development in collaboration with a design agency. Usability and User eXperience (UX) testing were conducted with people with cognitive complaints (n = 30), care partners (n = 4), and clinicians (n = 17) via think-aloud sessions, interviews, questionnaires, and focus groups. Results: Co-researchers emphasized the importance of clinicians gaining a holistic understanding of someone's life and circumstances, which was confirmed in the 'triangulation' questionnaire, focus group, and co-design sessions. Co-design resulted in a digital and analogue prototype of 'Helder in Gesprek' ('Clear in Conversation'), a tool to assist people with cognitive complaints in reflecting on what they wish to share with their clinician and facilitate communication during consultations. Usability testing revealed a generally positive attitude toward the prototypes, while also identifying areas for improvement, such as navigation, system feedback, understandability, distinguishable elements, and cognitive overload. Conclusion: Our human-centred design approach informed the design and development of two prototypes of 'Helder in Gesprek'. Usability and UX testing provide directions for re-design and feasibility testing in a real-world setting.

Indexed as

Alzheimerco-designdesign researchdevelopmenteHealthMemory clinicmHealthpatient–clinician communicationusabilityUX

Identifiers

PMID41573356
PMCPMC12820018

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.