Evidence map›Paper›PMID 41560981›Full record

ArticleLearning health systems2026

The Patient Engaged Research Center's Sustainable Funding Framework: A Path Towards Sustainable Patient Engagement in Care and Research Within a Health System.

Paige Coyne, Leah Copeland, Dana Murphy, Ashley Redding, Christine C Johnson, Karen E Kippen, Sara Santarossa

Abstract read
In one paragraph

Article in Learning health systems, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Paige CoyneDepartment of Public Health Sciences Henry Ford Health Detroit Michigan USA.ORCID https://orcid.org/0000-0002-9062-9587
Leah CopelandDepartment of Public Health Sciences Henry Ford Health Detroit Michigan USA.
Dana MurphyDepartment of Public Health Sciences Henry Ford Health Detroit Michigan USA.
Ashley ReddingDepartment of Public Health Sciences Henry Ford Health Detroit Michigan USA.
Christine C JohnsonDepartment of Public Health Sciences Henry Ford Health Detroit Michigan USA.
Karen E KippenDepartment of Public Health Sciences Henry Ford Health Detroit Michigan USA.
Sara SantarossaDepartment of Public Health Sciences Henry Ford Health Detroit Michigan USA.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Background: Despite growing acknowledgement that patient engagement (PE) in research, quality improvement, and clinical care is important, models showcasing how learning health systems (LHSs) can sustain long-term PE across endeavors remain scant. Henry Ford Health's (HFH) Patient Engaged Research Center (PERC) provides a replicable example by which other LHSs can feasibly sustain/grow PE across research, quality improvement, and clinical care in a more efficient and cohesive manner. Methods: To support its current infrastructure, PERC obtains financial support from an array of sources, including internal health system funding, external grant funding, and philanthropic support. In addition, PERC has created a Sustainable Funding Framework (SFF) and offers à la carte patient-centered services to further diversify its funding and ensure the sustainability of PE throughout the system. PERC utilizes a four-step SFF to offer expertise in conducting patient-centered research, as well as operational and programming support for PE-related initiatives at HFH and within the broader community. The steps are as follows: awareness/need recognition, intake process (intake form, intake meeting, and invoice), project status (approval or not), and project details/start date. Example services include, but are not limited to, instrument development (surveys, moderator guides for interviews/focus groups), facilitation/transcription (surveys/interviews/focus groups), data analysis and reporting (mixed methods and qualitative), Patient Advisor recruitment and training, development/maintenance of Patient and Family Advisory Councils, placement of patient advisors on committees/councils/projects, and grant writing. Discussion: PE in research, quality improvement, and clinical care within most health systems is often siloed and disjointed, lacking a sustainable financial or work process model. PERC's SFF provides a promising and replicable example by which LHSs can feasibly sustain and grow PE across research, quality improvement, and clinical care delivery, as well as incorporate this data in a feedback loop to improve all three.

Indexed as

patient‐centered carepatient participationsustainable development

Identifiers

PMID41560981
PMCPMC12812488

What OpenQuestion holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.