Evidence map›Paper›PMID 41559742›Full record

ArticleNursing open2026

Facilitators and Barriers of Relatives' Involvement in Care of Patients With Acquired Brain Injury or Malignant Brain Tumour: Scoping Review.

Rikke Guldager, Pernille Sejr Smedegaard, Sara Nordentoft, Lena Aadal, Mia Ingerslev Loft, Ingrid Poulsen

Registry-linked trialAbstract readScoping Review
In one paragraph

Article in Nursing open, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT07590726 (PIRe 2.0), which is not on this map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT07590726 nanot yet recruitingnot on this map

PIRe 2.0: A Stepped-Care Model for Involving Relatives Across Sectors

TypeinterventionalSponsorRigshospitalet, DenmarkRan2026 to 2029Enrolled160ConditionsBrain Injuries, Acute, Brain Tumor Adult, Brain (Nervous System) Cancers, Traumatic Brain InjuriesArmsSupportive Care
3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Rikke GuldagerDepartment of Neurosurgery, Copenhagen University Hospital - Rigshospitalet, Copenhagen, Denmark.ORCID https://orcid.org/0000-0003-1491-2556
Pernille Sejr SmedegaardDepartment of Neurosurgery, Copenhagen University Hospital - Rigshospitalet, Copenhagen, Denmark.
Sara NordentoftDepartment of Neurosurgery, Copenhagen University Hospital - Rigshospitalet, Copenhagen, Denmark.
Lena AadalHammel Neurorehabilitation and Research Centre, Hammel, Denmark.
Mia Ingerslev LoftDepartment of People and Technology, Roskilde University, Roskilde, Denmark.ORCID https://orcid.org/0000-0002-0009-3302
Ingrid PoulsenDepartment of People and Technology, Roskilde University, Roskilde, Denmark.

Funding

Danish Health Confederation and Danish Regions 2657
6 · The paper itself

Abstract

aimTo identify and map the breadth of available evidence on nurses' perspectives of the facilitators and barriers to relatives' involvement in the care continuum of patients with acquired brain injury or malignant brain tumour.

backgroundThe involvement of relatives in care and treatment may have a significant positive impact on the quality of care and treatment, leading to higher satisfaction with hospitalisation for patients, relatives and healthcare professionals. Nurses play an important role in nurturing a trusting and facilitating relatives' involvement. However, involving relatives seems complex and multifaceted, with many possible facilitators and barriers to consider.

designThis scoping review was conducted in accordance with the Joanna Briggs Institute's methodology for scoping reviews and a published a priori protocol. DATA SOURCES: A comprehensive literature search was conducted in MEDLINE (PubMed), CINAHL (EBSCO) and Embase (OVID). Reference lists of included studies, Google Scholar and Web of Science were also searched. Literature published in the English, German or Scandinavian languages since 2010 was included.

resultsThe search identified 4330 studies, of which 18 were included. No studies including involvement of relatives to patients with Malignant Brain Tumour was found. Nurses' perspectives of the facilitators and barriers to relatives' involvement of patients with acquired brain injury indicates that several facilitators and barriers contribute to or hinder relatives' involvement. The facilitators for involvement were mostly related to nursing tasks within the healthcare system, acknowledging relatives in their own rights, building a trusting relationship and using communication as a tool. Contrary, barriers were organisational factors, when the patient was seen as a primary focus of care, and informational challenges.

conclusionsThe results illustrate the complex nature of involvement from the perspective of nurses. The results indicate a paradox because several of the identified aspects are not mutually exclusive but rather represent aspects of involvement that range along a continuum. IMPLICATION FOR THE PROFESSION: Nurses' involvement of relatives in the care continuum is important, however evidence suggests that the relationships between relatives and nurses need to be strengthened to individualise the level of involvement. We suggest that the organisational and contextual factors that shape relative involvement need to be studied further. REPORT

methodPRISMA-ScR. PATIENT OR PUBLIC CONTRIBUTION: No Patient or Public Contribution. However, the review findings were shared and discussed with a panel of nurses from the neurosurgical speciality who validated and nuanced the findings into a Danish context.

Indexed as

Brain InjuriesBrain NeoplasmsFamilyProfessional-Family RelationsHumansacquired brain injuryinvolvementmalignant brain tumournursesrelatives

Identifiers

PMID41559742
PMCPMC12819177

What OpenQuestion holds

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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.