Evidence map›Paper›PMID 41556772›Full record

ArticleAmerican journal of Alzheimer's disease and other dementias

The Impact of Inappropriate Sexual Behaviors in People With Dementia on Family Caregivers: A Scoping Review.

Huiping Lin, Leah Macaden, Colin Chandler

Abstract readScoping Review
In one paragraph

Article in American journal of Alzheimer's disease and other dementias. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors.

Huiping LinNursing Studies, School of Health in Social Science, University of Edinburgh, Edinburgh, UK.ORCID 0009-0009-9704-036X
Leah MacadenNursing Studies, School of Health in Social Science, University of Edinburgh, Edinburgh, UK.ORCID 0000-0002-2680-6462
Colin ChandlerNursing Studies, School of Health in Social Science, University of Edinburgh, Edinburgh, UK.ORCID 0000-0003-1759-0417

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

This scoping review examines the impact of inappropriate sexual behaviors (ISBs) in people with dementia on their family caregivers. Through synthesizing 15 studies from 8 countries, 6 themes were identified: complex emotional responses, psychological distress, increased caregiver burden, practical caregiving challenges, impaired marital relationships, and social isolation. Findings reveal caregivers frequently experience helplessness, embarrassment, anger, anxiety, depression, and social withdrawal, exacerbated by societal taboos surrounding sexuality and limited professional support. Spousal caregivers are particularly affected, reporting increased emotional strain and marital distress. Practical caregiving difficulties, including safety and privacy concerns, limited access to care services, and challenging institutionalization decisions, further intensify caregiver burden. The review highlights significant research gaps, including the need for specialized assessment tools, broader and culturally diverse studies, and exploration of ISBs as distinct phenomena. Addressing these gaps is crucial for developing targeted interventions and adequately supporting caregivers, particularly within home-based and culturally sensitive dementia care services.

Indexed as

CaregiversDementiaSexual BehaviorHumansPsychological Distressalzheimer’s diseasebehavioral and psychological symptoms of dementiacaregiver burdendementiafamily caregiverhypersexualityinappropriate sexual behaviorssexual disinhibition

Identifiers

PMID41556772
PMCPMC12819981

What OpenQuestion holds

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LicenceCC BY-NC
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.