Evidence map›Paper›PMID 41556232›Full record

ArticleScandinavian journal of caring sciences2026

Using Complex Interventions to Develop Programme Theory for a Family-Focused Model of Telepalliative Care.

Eithne Hayes Bauer, Anders Nikolai Ørsted Schultz, Anthony C Smith, Frans Brandt, Georg Bollig, Karin Brochstedt Dieperink

Abstract read
In one paragraph

Article in Scandinavian journal of caring sciences, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Eithne Hayes BauerInternal Medicine Research Unit, University Hospital of Southern Denmark, Aabenraa, Denmark.ORCID 0000-0002-2195-5311
Anders Nikolai Ørsted SchultzInternal Medicine Research Unit, University Hospital of Southern Denmark, Aabenraa, Denmark.
Anthony C SmithCentre for Innovative Medical Technology, Odense University Hospital, Odense, Denmark.
Frans BrandtInternal Medicine Research Unit, University Hospital of Southern Denmark, Aabenraa, Denmark.
Georg BolligDepartment of Anaesthesiology, Intensive Care, Palliative Medicine and Pain Therapy, Helios Klinikum Schleswig, Schleswig, Germany.
Karin Brochstedt DieperinkDepartment of Clinical Research, Family Focused Healthcare Research Centre (FaCe), University of Southern Denmark, Odense, Denmark.ORCID 0000-0003-4766-3242

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundPatients and families find telepalliative care to be a valuable and convenient supplement to conventional palliative care services. However, challenges persist in sustaining meaningful telepalliative care beyond the initial implementation. Developing structured models that are culturally and contextually aligned may be the key to sustainability.

aimTo develop programme theory for a family-focused model of telepalliative care for adult patients and their families.

methodsGuided by the British Medical Research Council's framework for developing and evaluating complex interventions, data were collected through workshops with key stakeholders, participant observations and ethnographic interviews. Reflexive thematic and secondary data analyses were performed to develop programme theory and identify key uncertainties.

resultsSix workshops were held at two Danish locations with 49 participants. Three themes were generated. (1) Virtual care in palliative settings: Adapting to new norms and evolving practices in telepalliative care. This theme explores how professionals, patients and families adapted to new norms in virtual interactions without structured guidance. (2) Balancing trust and technology: The role of face-to-face consultations in telepalliative care. This theme examines the balance between face-to-face consultations and telepalliative care. (3) Governance and equity in telepalliative care: Ensuring access, sustainability and quality. This theme explores factors affecting the implementation, sustainability and equitable access to telepalliative care services.

conclusionThe programme theory highlighted the link between clinicians' level of digital competency and benefits to patients and families in telepalliative care, emphasising the need to enhance clinicians' skills. Further exploration is needed to identify the specific digital skills required for delivering effective telepalliative care. Key considerations include the importance of face-to-face first visits to establish relationships and the concern that technology may overshadow palliative care.

Indexed as

FamilyPalliative CareTelemedicineAdultAgedDenmarkFemaleHumansMaleMiddle Agedcomplex interventionsfamily‐focused carepalliative careprogramme theorytelehealthtelepalliative care

Identifiers

PMID41556232
PMCPMC12923989

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.