Evidence map›Paper›PMID 41553006›Full record

SynthesisBritish journal of health psychology2026

A systematic review and meta-synthesis of qualitative studies of alopecia: Managing identity and appearance changes.

Zoe Hurrell, Vasilis S Vasiliou, Fuschia M Sirois, Andrew R Thompson

Abstract readSystematic Review
In one paragraph

Synthesis in British journal of health psychology, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Zoe HurrellSouth Wales Doctoral Programme in Clinical Psychology, School of Psychology, Cardiff University, Cardiff, UK.
Vasilis S VasiliouDepartment of Psychology, Royal Holloway, University of London, London, UK.ORCID https://orcid.org/0000-0003-3501-4093
Fuschia M SiroisDepartment of Psychology, Durham University, Durham, UK.ORCID https://orcid.org/0000-0002-0927-277X
Andrew R ThompsonSouth Wales Doctoral Programme in Clinical Psychology, School of Psychology, Cardiff University, Cardiff, UK.ORCID https://orcid.org/0000-0001-6788-7222

Funding

Health Education and Improvement Wales (HEIW) N/A
6 · The paper itself

Abstract

purposeAlopecia is a medical dermatology condition resulting in multiple psychosocial negative consequences in identity and appearence. Despite numerous qualitative studies examining the experience of people with alopecia, a comprehensive synthesis is lacking. This can obscure progress in research and minimize the impact of psychosocial support people with alopecia can receive. This systematic meta-synthesis aimed to critically integrate the existing literature to enhance psychological understanding of how people with alopecia manage issues about identity and appearance changes, and provide some evidence-based recommendations for clinicians working in the area of psychodermatology.

methodsA systematic search of six databases: APA PsycInfo (OVID), Medline (OVID), Embase (OVID), CINAHL (EBSCO) and Scopus identified 22 eligible studies on the lived experience of alopecia among adults, adolescents and parents. The Critical Appraisal Skills Programme Qualitative Checklist was used to appraise the quality of the studies. Extracted data underwent inductive thematic analysis.

resultsThe synthesis, representing 990 people living with alopecia, identified five main themes, focusing on managing identity and appearance changes: (1) coming to terms with a changed identity; (2) the journey to acceptance; (3) complexities of concealing hair loss; (4) social influences in both facilitating and hindering adaptation; and (5) treatment experiences highlighting unmet needs. Findings reveal substantial variation in managing identity and appearance changes, with some individuals achieving acceptance swiftly while others struggle. Social reactions and personal interpretations significantly shape adjustment.

conclusionsAlopecia profoundly impacts identity, coping, and social interactions, often accompanied by dissatisfaction with health care and treatment options. The reactions of other people and interpretations of these experiences appear to play a key role in adjustment. The review underscores the need for personalized, non-pharmacological interventions that address personal and social challenges. Greater co-production in health care training and intervention development is necessary to improve support for individuals with appearance-altering conditions.

Indexed as

Adaptation, PsychologicalAlopeciaSelf ConceptAdultHumansQualitative ResearchAlopeciacopingdermatologylived experiencequalitativeskin conditionsstigmathematic synthesis

Identifiers

PMID41553006
PMCPMC12814765

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.