ArticleIJTLD open2026
Conceptualising the experience of having TB: a global qualitative study.
Article in IJTLD open, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
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7 authors.
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Abstract
backgroundTB and aspects of its treatment are known to impair health-related quality of life, but data are lacking on how pulmonary TB is experienced from the standpoint of affected individuals.
methodsWe conducted a review of published literature and online content with the goal of conceptualising the personal experience of TB. Using social media sources drawn from the years 2020-2022, concepts from the literature review were updated with the perspectives of people with TB and caregivers from multiple countries across different World Bank income categories.
resultsThe literature review identified 110 published articles and 91 stories of people with TB, enabling the generation of a conceptual model representing symptoms, disease impacts, and diagnostic and treatment challenges. Concepts of interest varied by country income level. The social media analysis captured 657 posts across 15 countries; the impacts described included physical (48%), emotional (28%), economic (18%), social (13%), caregiver (10%), and cultural (3%) impacts. Diagnosis was frequently associated with delays, access challenges, and confusion with COVID-19.
conclusionPeople affected by TB worldwide report impacts on multiple life dimensions, but the types of impact vary by geography, income, and culture. Additional research sensitive to local experience is needed.
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