ArticlePrenatal diagnosis2026
A Framework for Prenatal Counselling Recommendations in Congenital Diaphragmatic Hernia: A RAND-Modified Delphi Study.
Article in Prenatal diagnosis, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Who cites it
1 citing paper in PubMed.
- A Framework for Prenatal Counselling Recommendations in Congenital Diaphragmatic Hernia: A RAND-Modified Delphi Study.Prenatal diagnosis · 2026Article
Corrections and comments
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Authors and funding
13 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveTo develop a consensus-based framework to support individualized prenatal counselling for congenital diaphragmatic hernia.
methodA RAND-modified Delphi study was conducted with an expert panel of parents (n = 10) and healthcare professionals (n = 17) working in Dutch or Flemish CDH European Reference Network (ERN) centres. In three consensus rounds, a preliminary list of recommendations (n = 101) from literature and previous studies was refined to a final list of recommendations.
resultsThe process yielded 40 recommendations across four domains: (a) organization and logistics of the counselling, (b) information provision, (c) decision-making and (d) preconditions. For (a), counselling should take place in CDH ERN centres, involving a multidisciplinary team familiar with the severity assessment and management of foetuses and infants with CDH. For (b), both medical and psychosocial aspects should be discussed. For (c), options for pregnancy continuation, antenatal management where applicable, or termination must be clearly explained, ensuring parental understanding, autonomy, and value clarification. For (d), high-quality, personalized information, decision-making support, and care for mental health are essential.
conclusionA framework for prenatal counselling for CDH was developed, combining evidence-based extraction of recommendations with expert consensus. It incorporates the needs, experiences, perceptions, and perspectives of both parents and healthcare providers.
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