Evidence map›Paper›PMID 41545047›Full record

ArticleBMJ open2026

Global scoping review of key domains of patient-reported experience of care measures across life stages and healthcare technical areas.

Helen H Habib, Connie Zhang, Kathleen Hill, Lara M E Vaz, Barbara Rawlins, Özge Tunçalp, Moise Muzigaba, Ian Brownwood, Patience A Afulani, Person-Centered Care Task Team of the WHO Life Stages Quality of Care Metrics Technical Working Group

Abstract readScoping Review
In one paragraph

Article in BMJ open, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Helen H HabibAfrican Population and Health Research Center, Nairobi, Kenya helenhhabib@gmail.com.ORCID http://orcid.org/0000-0001-7767-9312
Connie ZhangFolio Health, Kansas City, Kansas, USA.
Kathleen HillJHPIEGO, Washington DC, NW, District of Columbia, USA.
Lara M E VazPopulation Reference Bureau, Washington, District of Columbia, USA.
Barbara RawlinsUSAID, Washington, District of Columbia, USA.
Özge TunçalpInstitute of Tropical Medicine, Antwerp, Belgium.
Moise MuzigabaDepartment of Sexual, Reproductive, Maternal, Child, Adolescent and Ageing Health, World Health Organization, Geneva, Switzerland.ORCID http://orcid.org/0000-0003-4323-9217
Ian BrownwoodHealth Policy Analysis Pty Ltd, St Leonards, New South Wales, Australia.
Patience A AfulaniObstetrics, Gynecology, and Reproductive Sciences, University of California San Francisco, San Francisco, California, USA.ORCID http://orcid.org/0000-0002-6739-234X
Person-Centered Care Task Team of the WHO Life Stages Quality of Care Metrics Technical Working Group

Funding

World Health Organization 001
6 · The paper itself

Abstract

objectivesPatient-reported experience measures (PREMs) are measures of patients' perceptions of care they receive. PREMs are critical in developing and evaluating programmes that aim to improve patient healthcare experiences and quality of care (QoC) according to patient-defined needs. This review aims to map key domains of PREMs across distinct healthcare technical areas and life stages from globally available literature.

designA scoping review adapting Arksey and O'Malley's framework and Joanna Briggs Institute's guidelines for the conduct of scoping reviews. DATA SOURCES: Google Scholar, PubMed, WHO, US Academy of Medicine and USAID Momentum. ELIGIBILITY: PREMs literature from electronic repositories of grey and peer-reviewed publications, published in English historically up to September 2023. DATA EXTRACTION AND ANALYSIS: Two lead reviewers with support from the technical working group co-created a review framework of healthcare technical areas, life stages and PREMs domains. We screened eligible articles, prioritising reviews except for technical areas with no reviews, where we then selected individual studies. We charted, analysed and synthesised data from 52 eligible articles.

resultsPREMs literature has recently increased, especially in low-income and middle-income countries (LMICs), although studies in high-income countries (HICs) dominate in proportion (n=38; 73.1%). Out of 52 eligible articles, technical areas with most publications were sexual and reproductive health (n=21; 40.4%) and general outpatient care (n=11; 21.2%). Studies in adulthood (n=24; 46.2%) and from pregnancy and birth to postnatal (n=16; 30.8%) were most represented. PREMs studies reported mostly on communication and rapport (n=33; 63.5%) and respect and dignity (n=42; 80.8%) domains. Nearly a quarter (n=12; 23.1%) of the articles included only validated tools; the rest included a combination of validated and unvalidated measures. Of the tools relating to life stages of babies, younger children and older adults, the majority (n=17; 94.4%) included patient proxies.

conclusionPREMs, as an important component of QoC measurement, are increasing across several healthcare technical areas and life stages with commonalities and notable distinctions in measurement domains and tools. Evidence on PREMs largely comes from HICs. Evidence on critical, yet sometimes overlooked domains, highlights key QoC implementation gaps. The adaptation and utilisation of PREMs in programmes, especially in LMICs and under-represented technical areas, present opportunities to close the QoC disparities in those settings. Strategic, concerted efforts towards the harmonisation of PREMs tools across multiple life course stages and technical areas are critically needed in high-level quality improvement efforts.

Indexed as

Delivery of Health CarePatient Reported Outcome MeasuresPatient SatisfactionQuality of Health CareHumansHealth ServicesQuality ImprovementQuality in health care

Identifiers

PMID41545047
PMCPMC12815105

What OpenQuestion holds

Textmetadata
LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.