Evidence map›Paper›PMID 41543442›Full record

ArticleJornal brasileiro de nefrologia

Translation, cross-cultural adaptation, and validation of the Integrated Palliative Care Outcome Scale Renal (IPOS-Renal) for Brazilian Portuguese.

Márcia Alvarenga da Trindade, Ana Elizabeth Prado Lima Figueiredo, Carlos Eduardo Poli-de-Figueiredo

Abstract readValidation Study
In one paragraph

Article in Jornal brasileiro de nefrologia. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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4 · The record

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5 · Who and what money

Authors and funding

3 authors.

Márcia Alvarenga da TrindadePontifícia Universidade Católica do Rio Grande do Sul, Medicina e Ciências da Saúde, Porto Alegre, RS, Brazil.ORCID http://orcid.org/0000-0002-3858-6401
Ana Elizabeth Prado Lima FigueiredoPontifícia Universidade Católica do Rio Grande do Sul, Enfermagem, Porto Alegre, RS, Brazil.ORCID http://orcid.org/0000-0002-8555-8649
Carlos Eduardo Poli-de-FigueiredoPontifícia Universidade Católica do Rio Grande do Sul, Medicina, Porto Alegre, RS, Brazil.ORCID http://orcid.org/0000-0002-7333-8884

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

introductionChronic Kidney Disease (CKD) is associated with a high symptom burden. In Brazil, there is no specific instrument to assess symptoms in CKD patients receiving palliative care. The Integrated Palliative Care Outcome Scale Renal (IPOS-Renal) has been translated and validated in 13 languages.

objectiveTo translate, cross-culturally adapt, and validate the IPOS-renal for Brazilian Portuguese.

methodsA methodological study conducted in eight phases: conceptual definition, forward translation, back-translation, expert review, cognitive interviews, proofreading, psychometric testing, and final reporting. A total of 153 stage 5 CKD patients were assessed with the IPOS-renal and the Edmonton Symptom Assessment System (ESAS-r) between February and March 2024. Instruments were reapplied after 15 days in 95 patients.

resultsThe scale demonstrated internal consistency, reliability, temporal stability, and convergent validity with the ESAS-r. The most prevalent symptoms were drowsiness (44%), difficulty walking (44%), fatigue/lack of energy (43%), and pain (36%). Less frequent symptoms included dyspnea (7%), diarrhea (14%), and vomiting (14%). Unbearable symptoms intensity was rare, including emotional symptoms (5%), difficulty sleeping (3%), and fatigue/lack of energy (3%). Symptom intensity varied, being severe for pain (24-25%) and drowsiness (21%); and moderate for difficulty walking (25%) and fatigue/lack of energy (22%).

conclusionThe Brazilian Portuguese version of the IPOS- renal is valid, reliable, and suitable for identifying biopsychosocial symptoms in stage 5 CKD patients receiving palliative care.

Indexed as

Palliative CareRenal Insufficiency, ChronicAgedBrazilCultural CharacteristicsFemaleHumansLanguageMaleMiddle AgedReproducibility of ResultsSymptom BurdenTranslations

Identifiers

PMID41543442
PMCPMC12810525

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