Evidence map›Paper›PMID 41540237›Full record

ArticleJournal of human genetics2026

Press release guide for genomic research and medicine: a framework co-developed with public contributors in Japan.

Misaki Arakawa, Tomoyo Takeuchi, Yusuke Ebana, Kaori Muto, Masayuki Yoshida, Fuji Nagami

Abstract read
In one paragraph

Article in Journal of human genetics, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Misaki ArakawaTohoku Medical Megabank Organization, Tohoku University, Sendai, Miyagi, Japan.
Tomoyo TakeuchiTsukuba Human Tissue Biobank Center, University of Tsukuba Hospital, Tsukuba, Ibaraki, Japan.
Yusuke EbanaLife Science and Bioethics Research Center, Institute of Science Tokyo, Tokyo, Japan.
Kaori MutoThe Institute of Medical Science, The University of Tokyo, Tokyo, Japan.
Masayuki YoshidaLife Science and Bioethics Research Center, Institute of Science Tokyo, Tokyo, Japan.
Fuji NagamiTohoku Medical Megabank Organization, Tohoku University, Sendai, Miyagi, Japan. fuji.nagami.d5@tohoku.ac.jp.

Funding

Japan Agency for Medical Research and Development (AMED) 24tm0424701h0003
6 · The paper itself

Abstract

Press releases on genomic research play an important role in Japan. Not only do journalists use them as major sources of news stories, but the public also accesses them directly across various media platforms. Given the unique characteristics of genomic information, including ethical implications, it is essential to report research results in a responsible and comprehensive manner. To support individuals involved in communicating such results, we developed a press release guide for genomic research in collaboration with diverse stakeholders, including members of the public. This guide outlines 12 key items for scientific research press releases, five of which are tailored to genomic research: protect personal information; avoid detrimental behavior change; consider individuals involved; avoid prejudice or discrimination; and avoid "genetic determinism." For each item, supplementary explanations and guidance are presented in the form of "Note" and "For Media." Additionally, fresh insights gained through the discussions with the diverse stakeholders are incorporated into a new section titled "From a different viewpoint." Genomic research is increasingly integrated into clinical practice and society, which indicates that reports on genomic studies directly affect a broader audience. Furthermore, enhancing the reporting quality of genomic research is critical because of the distinctive characteristics of genomic information. Our guide provides practical support for those disseminating genomic research results and will be valuable in promoting communication among stakeholders with different roles and expectations.

Indexed as

Genomic MedicineGenomicsInformation DisseminationMass MediaHumansJapan

Identifiers

PMID41540237
PMCPMC12948661

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.