Evidence map›Paper›PMID 41528993›Full record

ReviewPLOS digital health2026

Moving beyond the empty cell: The threat of decontextualized healthcare data.

Aya El Mir, Eric Bezerra de Sousa, Ignacio Mesina-Estarrón, Leo Anthony Celi, Moad Hani, Mohammed Benjelloun, Neha Nageswaran, Saïd Mahmoudi, Shaheen Siddiqui, Sreeram Sadasivam and 1 more

Abstract readReview
In one paragraph

Review in PLOS digital health, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors.

Aya El MirDepartment of Engineering, New York University Abu Dhabi, Abu Dhabi, United Arab Emirates.ORCID https://orcid.org/0009-0007-8274-3340
Eric Bezerra de SousaFaculty of Medicine, University of Sao Paulo, Sao Paulo, Brazil.ORCID https://orcid.org/0009-0004-3631-1211
Ignacio Mesina-EstarrónDepartment of Neurosurgery, Children's Hospital of Orange County, Orange, California, United States of America.
Leo Anthony CeliLaboratory for Computational Physiology, Massachusetts Institute of Technology, Massachusetts, United States of America.
Moad HaniDepartment of Computer Engineering and Management, Faculty of Engineering, University of Mons (UMONS), Mons, Belgium.
Mohammed BenjellounDepartment of Computer Engineering and Management, Faculty of Engineering, University of Mons (UMONS), Mons, Belgium.
Neha NageswaranRobotic Assistant Systems, Carl von Ossietzky Universität Oldenburg, Oldenburg, Germany.
Saïd MahmoudiDepartment of Computer Engineering and Management, Faculty of Engineering, University of Mons (UMONS), Mons, Belgium.
Shaheen SiddiquiGeneSilico, Inc., Austin, Texas, United States of America.
Sreeram SadasivamSoftware Engineering, EGYM, Munich, Germany.
William Greig MitchellDepartment of Ophthalmology, Cambridge University Hospitals, Cambridge, United Kingdom.ORCID https://orcid.org/0000-0002-2122-6741

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Missing, inaccurate, or poorly documented data in healthcare is often treated as a technical problem to be statistically resolved via imputation, deletion, or modeling assumptions about randomness. However, such inaccuracies relate to far more complex socioeconomic and geopolitical issues, rather than "errors of data entry" to be ameliorated with statistical modeling techniques. We outline that what is really missing or inaccurate is the context in which the data is collected-and that only by understanding this context can we begin to prevent artificial intelligence's (AIs) amplification of misleading, decontextualized data. We critically examine how traditional modeling methods fail to account for the factors that influence what data gets recorded, and for whom. We show how AI systems trained on decontextualized data reinforce health inequities at scale. And, we review recent literature on context-aware approaches to understanding data, that incorporate metadata, social determinants of health, fairness constraints, and participatory governance to build more ethical and representative systems. Our analysis urges the AI and healthcare communities to move beyond the traditional emphasis on statistical convenience, toward socially grounded and interdisciplinary strategies for handling decontextualized data.

Identifiers

PMID41528993
PMCPMC12798993

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.