Evidence map›Paper›PMID 41527142›Full record

ArticleResearch involvement and engagement2026

Giving credit where credit's due - recognition of patient partners in health research.

Danielle Pietramala, Gabriel Zamma, Candice Barrans, Elaha Niazi, Colleen Pawliuk, Anne-Mette Hermansen, Hal Siden

Abstract readLetter
In one paragraph

Article in Research involvement and engagement, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Danielle PietramalaBC Children's Hospital Research Institute, 938 W 28th Ave, Vancouver, BC, V5Z 4H4, Canada.
Gabriel ZammaBC Children's Hospital Research Institute, 938 W 28th Ave, Vancouver, BC, V5Z 4H4, Canada.
Candice BarransBC Children's Hospital Research Institute, 938 W 28th Ave, Vancouver, BC, V5Z 4H4, Canada.
Elaha NiaziBC Children's Hospital Research Institute, 938 W 28th Ave, Vancouver, BC, V5Z 4H4, Canada.
Colleen PawliukBC Children's Hospital Research Institute, 938 W 28th Ave, Vancouver, BC, V5Z 4H4, Canada.
Anne-Mette HermansenBC Children's Hospital Research Institute, 938 W 28th Ave, Vancouver, BC, V5Z 4H4, Canada. annemette.hermansen@ubc.ca.
Hal SidenBC Children's Hospital Research Institute, 938 W 28th Ave, Vancouver, BC, V5Z 4H4, Canada.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Patient partnership in health research has gained prominence over the last decade. Patient partners and the impact of their perspectives on research activities and outcomes are increasingly valued. However, despite the recognized importance of patient contributions, issues persist regarding their visibility in research outputs. While guidelines for authorship and acknowledgment of patient partners exist, inconsistencies in their application remain prevalent. This commentary surveys the current landscape of authorship, acknowledgement, and indexing practices for patient involvement in health research. We highlight three persistent challenges: (1) insufficient recognition of patient partners who meet the criteria for co-authorship or formal acknowledgment; (2) vague reporting of patient partner contributions within manuscripts; and (3) widely varying terminology and indexing terms that hinder discoverability in academic databases. To address these challenges, we propose actionable recommendations: Following existing reporting guidelines or instituting new guidelines for patient engagement within academic journals; documenting patient partner contributions in searchable fields of publications; and adopting consistent and standardized terminology for patient engagement. By implementing these changes, the health research community can better capture and recognize the valuable contributions of patient partners, thereby advancing Patient-Oriented Research practices and ultimately improving health outcomes for patients and families.

Indexed as

Health researchPatient advocatePatient engagementPatient oriented researchPatient partnersSearchability

Identifiers

PMID41527142
PMCPMC12797586

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.