Evidence map›Paper›PMID 41526031›Full record

ArticleBMJ health & care informatics2026

Traversing the data landscape: insights and recommendations from a case study using novel linkage of care home and health data.

Elizabeth Crellin, Kaat De Corte, Freya Tracey, Jennifer Kirsty Burton, Stacey Rand, Stephen Allan, Arne Timon Wolters, Claire Goodman, Therese Lloyd

Abstract read
In one paragraph

Article in BMJ health & care informatics, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Elizabeth CrellinThe Health Foundation, London, UK liz.crellin@health.org.uk.ORCID http://orcid.org/0000-0001-8774-224X
Kaat De CorteThe Health Foundation, London, UK.ORCID http://orcid.org/0000-0002-4370-2606
Freya TraceyThe Health Foundation, London, UK.
Jennifer Kirsty BurtonAcademic Geriatric Medicine, School of Cardiovascular and Metabolic Health, College of Medical, Veterinary and Life Sciences, University of Glasgow, Glasgow, UK.ORCID http://orcid.org/0000-0002-4752-6988
Stacey RandCare and Outcomes Research Centre (COReC), University of Kent, Canterbury, UK.
Stephen AllanCare and Outcomes Research Centre (COReC), University of Kent, Canterbury, UK.
Arne Timon WoltersNorthumberland Tyne and Wear NHS Foundation Trust, Newcastle upon Tyne, UK.ORCID http://orcid.org/0009-0002-8697-3163
Claire GoodmanCentre for Research in Public Health and Community Care, University of Hertfordshire, Hatfield, UK.ORCID http://orcid.org/0000-0002-8938-4893
Therese LloydThe Health Foundation, London, UK.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

The insights available from linking routine health data have transformative potential for understanding and improving population health and well-being. However, cross-sectoral data linkage in the UK remains challenging, with persistent barriers around governance, interoperability and data quality.This Perspective paper draws on the experiences of the Developing research resources And minimum data set for Care Homes Adoption and use (DACHA) study which linked administrative health and social care records with records from care home software providers for over 700 older adult care home residents, an underserved population in research, in England to build a proof-of-concept minimum dataset.From our learning, we make eight recommendations for researchers, research funders, data owners, data controllers and policymakers to strengthen future data linkage across health and social care. We recommend: (1) sharing metadata to support transparency and efficient reuse; (2) clarifying purposes for data sharing; (3) streamlining information governance processes; (4) recognising the health and social care system as a research partner; (5) resourcing data quality at the point of collection; (6) acknowledging the work needed to adapt routine data for research; (7) standardising core variables for interoperability; and (8) designing linkage for wider public benefit and safe data reuse.Implementing these recommendations would help create a more coherent, efficient and equitable data landscape, realising the potential of existing data to improve care quality, research capacity and population health.

Indexed as

Electronic Health RecordsMedical Record LinkageNursing HomesEnglandHumansInformation DisseminationUnited KingdomData ManagementHealth Services ResearchMedical Record Linkage

Identifiers

PMID41526031
PMCPMC12815160

What OpenQuestion holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.