ArticleJournal of the Society for Cardiovascular Angiography & Interventions2025
Health-Related Quality of Life, Challenges, and Experiences of Patients With Congenital Heart Disease After Cardiac Catheterization: A Mixed-Methods Study.
Article in Journal of the Society for Cardiovascular Angiography & Interventions, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.
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Who cites it
1 citing paper in PubMed.
- Psychological Aspects and Mental Health Risks in Children and Adolescents with Congenital Heart Defects-A Systematic Review.Diagnostics (Basel, Switzerland) · 2026Review
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Authors and funding
6 authors.
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Abstract
Background: In Pakistan, where health care resources for congenital heart disease (CHD) are expanding, this study aimed to assess the health-related quality of life (HRQoL), challenges, and experiences of patients with CHD after cardiac catheterization. Using a mixed-methods approach, quantitative arm compared the HRQoL of patients with CHD with that of age-matched siblings identified predictors of low HRQoL scores, and qualitative arm explored patient's perceptions of quality of life, the challenges, and their experiences. Methods: In this prospective, cross-sectional study conducted at The Aga Khan University Hospital, quantitative data were collected via pediatric quality-of-life questionnaires from 120 case-control pairs, while qualitative insights were gathered through semistructured interviews. Data analysis used descriptive stats, paired Results: A total of 320 interviews were analyzed, including 120 patients with CHD, 120 age-matched siblings, and 80 parents. Quantitative data revealed high scores with no significant HRQoL differences between patients with CHD and controls. Minor differences were observed in physical and emotional domains, and higher-risk patients showed few concerns in cardiac-related HRQoL. Predictors such as age at diagnosis and Procedural Risk in Congenital Cardiac Catheterization (PREDIC Conclusions: This study found high HRQoL scores in patients with CHD after cardiac catheterization, with significant associations of low scores to late age at diagnosis and PREDIC
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