ArticleJournal of aging research2025
Dementia Care Specialists' Perspectives of Diagnosis and Early Psychosocial Care: A Qualitative Analysis of Focus Groups in Two Large Academic Medical Centers.
Article in Journal of aging research, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
5 citing papers in PubMed.
- Medical professionals' perspectives and experiences in disclosing a dementia diagnosis: a grounded theory study.BMC geriatrics · 2026Article
- "We can do this. That I learned.": A nonrandomized open pilot of Resilient Together for Dementia, a post-diagnosis dyadic intervention.BMC geriatrics · 2026Article
- The distinct challenges of living with young-onset dementia.NPJ dementia · 2026Review
- Resilient together for dementia: A qualitative study of couples' treatment preferences to address distress early after diagnosis.Journal of Alzheimer's disease : JAD · 2025Article
- Dementia Care Specialists' Perspectives of Diagnosis and Early Psychosocial Care: A Qualitative Analysis of Focus Groups in Two Large Academic Medical Centers.Journal of aging research · 2025Article
Corrections and comments
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Authors and funding
10 authors.
Funding
Abstract
Background and Objective: Alzheimer's disease and related dementias (ADRDs) are progressive conditions that substantially impact individuals and families. Timely diagnosis and early support are critical for long-term adjustment. However, current dementia care models do not meet needs of patients and families. Dementia care specialists treating individuals with dementia offer unique insight into care needs of diverse groups of patients, families, and healthcare systems that can be used to identify opportunities to improve care. To understand dementia care specialists' impressions of factors impacting ADRD diagnosis and postdiagnosis support, we aimed to identify factors that impact (1) timely and accurate diagnosis, (2) diagnostic disclosure and provision of postdiagnosis support, and (3) patient and care-partner adjustment after diagnosis. Research Design and Methods: We recruited dementia care specialists treating persons living with dementia ( Results: We identified subthemes within three overarching a priori determined themes. Participants highlighted the presence of delays in referrals, time constraints, specialist discomfort, and lack of training as factors impacting the timeliness and accuracy of diagnosis. They also highlighted information needed in disclosure visits, ways of coordinating care, and identifying early support needs. Finally, participants highlighted factors impacting adjustment including families' insight and acceptance, distress, and available resources. Discussion and Implications: Our study highlights the challenges dementia care specialist specialists face in delivering early support for individuals and families impacted by ADRDs and suggests avenues for revising existing care models.
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