Evidence map›Paper›PMID 41497574›Full record

ArticleParkinson's disease2025

EMPOWER-PD: Evaluation of an 8-Week Co-Designed Self-Management Program in People With Parkinson's Disease and Their Caregivers: An Intervention Study With Long-Term Follow-Up.

Trine Hørmann Thomsen, Sara Lungby Skovbølling, Maria Brønden, Jakob Frederiksen, Maja Hedegaard Lauritzen, Marcus Dalsgaard, Bo Biering-Sørensen

Abstract read
In one paragraph

Article in Parkinson's disease, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Trine Hørmann ThomsenMovement Disorder and Pain Research Center, Department of Neurology, Copenhagen University Hospital, Copenhagen, Denmark, gentoftehospital.dk.ORCID https://orcid.org/0000-0001-9441-1000
Sara Lungby SkovbøllingDepartment of Neurology, Bispebjerg-Frederiksberg University Hospital, Copenhagen, Denmark.
Maria BrøndenSano specialized Rehabilitation Center, Skælskør, Denmark.
Jakob FrederiksenMovement Disorder and Pain Research Center, Department of Neurology, Copenhagen University Hospital, Copenhagen, Denmark, gentoftehospital.dk.
Maja Hedegaard LauritzenMovement Disorder and Pain Research Center, Department of Neurology, Copenhagen University Hospital, Copenhagen, Denmark, gentoftehospital.dk.
Marcus DalsgaardMovement Disorder and Pain Research Center, Department of Neurology, Copenhagen University Hospital, Copenhagen, Denmark, gentoftehospital.dk.
Bo Biering-SørensenMovement Disorder and Pain Research Center, Department of Neurology, Copenhagen University Hospital, Copenhagen, Denmark, gentoftehospital.dk.ORCID https://orcid.org/0000-0002-7682-1353

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Empowerment and implementation of self-management strategies are vital components in the future care of chronic, neurological patient groups, including people with Parkinson's disease (PD). This study aimed to evaluate the feasibility and effectiveness of an 8-week self-management intervention designed for people with PD (PwP) with follow-up assessments at 3 and 6 months postintervention. The program focused on developing self-management skills, coping strategies, disease education, mindfulness, exercise routines, and individual goal-setting tools. Objective measurements using Parkinson's KinetiGraph™ (PKG) were employed to monitor motor symptoms, immobility levels, and burden of nonmotor symptoms (self-reported in the PKG portal). Participants, serving as their own controls, were recruited from movement disorder clinics, private neurologists, and a specialized rehabilitation center. Primary endpoints were change in Health Education Impact Questionnaire (HeiQ) and Health Literacy Questionnaire (HLQ-14) scores, assessed at baseline and at 3- and 6-month follow-up. Secondary endpoints included changes in quality of life, self-efficacy, motor symptoms (PKG data), nonmotor symptoms, contacts to the clinics 6 months before and after the intervention, and time spent with immobility. Eighty PwP completed the program, and 59 caregivers attended the educational sessions. Statistically significant changes were found between baseline and follow-up in the motor symptom burden, self-efficacy, and reduced clinical contacts. Although no statistical changes were observed in health literacy, quality of life, and nonmotor symptoms, sustained positive trends were observed. The findings suggest that the program may enhance empowerment and self-management strategies in PwP, particularly in self-efficacy level, managing motor symptoms, and less need of contact to the clinics.

Indexed as

coping strategies and goal-settingempowermentParkinson’s diseasesymptom burden

Identifiers

PMID41497574
PMCPMC12767402

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.