Evidence map›Paper›PMID 41492420›Full record

ArticleAJPM focus2026

Proximity to Healthcare Services Among Individuals With Duchenne Muscular Dystrophy.

Shiny Thomas, Treeva A Jaff, Kristin M Conway, Paul A Romitti, Tabassum Z Insaf, Kristin Sommerhalter, Amber Gedlinske, Emma Crenshaw, Nedra Whitehead, Brian Humphries and 7 more

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in AJPM focus, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

17 authors.

Shiny ThomasBureau of Environmental and Occupational Epidemiology, New York State Department of Health, Albany, New York.
Treeva A JaffDepartment of Epidemiology and Biostatistics, College of Integrated Health Sciences, University at Albany, Albany, New York.
Kristin M ConwayDepartment of Epidemiology, College of Public Health, University of Iowa, Iowa City, Iowa.
Paul A RomittiDepartment of Epidemiology, College of Public Health, University of Iowa, Iowa City, Iowa.
Tabassum Z InsafBureau of Environmental and Occupational Epidemiology, New York State Department of Health, Albany, New York.
Kristin SommerhalterBureau of Environmental and Occupational Epidemiology, New York State Department of Health, Albany, New York.
Amber GedlinskeDepartment of Internal Medicine, Carver College of Medicine, University of Iowa, Iowa City, Iowa.
Emma CrenshawResearch Triangle Institute International, Research Triangle Park, Durham, North Carolina.
Nedra WhiteheadResearch Triangle Institute International, Research Triangle Park, Durham, North Carolina.
Brian HumphriesSouth Carolina Department of Public Health, Cayce, South Carolina.
Reba BerrySouth Carolina Department of Public Health, Cayce, South Carolina.
Julie RoyerSouth Carolina Revenue and Fiscal Affairs Office, Columbia, South Carolina.
Joshua R MannDepartment of Preventive Medicine, University of Mississippi Medical Center, Jackson, Mississippi.
Sergey KrikovDivision of Medical Genetics, Department of Pediatrics, School of Medicine, University of Utah, Salt Lake City, Utah.
Manju Jayasimha Pula JayaramBureau of Environmental and Occupational Epidemiology, New York State Department of Health, Albany, New York.
Marcia L FeldkampDivision of Medical Genetics, Department of Pediatrics, School of Medicine, University of Utah, Salt Lake City, Utah.
Muscular Dystrophy Surveillance, Tracking, and Research Network (MD STARnet)

Funding

NCBDD CDC HHS U01 DD001054NCBDD CDC HHS U01 DD001108NCBDD CDC HHS U01 DD001116NCBDD CDC HHS U01 DD001117NCBDD CDC HHS U01 DD001119NCBDD CDC HHS U01 DD001120NCBDD CDC HHS U01 DD001123NCBDD CDC HHS U01 DD001126
6 · The paper itself

Abstract

Introduction: The aim of this study was to describe travel from residence to healthcare facilities among individuals with Duchenne muscular dystrophy. Methods: The sample included 302 males with Duchenne muscular dystrophy born on January 1, 2000, and followed through December 31, 2015. Using geocoded residential and facility addresses, the authors estimated travel time for trips to unique facilities. Results: The authors identified 7,546 provider visits and 6,064 visits to unique facilities. Over an average of 4.8 person-years of follow-up, the authors estimated a mean of 5.3 unique provider visits and a mean of 4.3 unique visits to facilities per person-year. Overall median drive time exceeded 1.5 hours roundtrip, and averaged overall median 1-way public transit time was 1.9 hours. The longest drive times were detected among younger, non-Hispanic Whites, and other race/ethnicity groups. Conclusions: The findings suggest long travel times for clinical care for a subset of individuals. Additional research is needed to examine the burden associated with traveling to healthcare facilities.

Indexed as

Access to carecare considerationsDuchenne muscular dystrophygeographic proximitytravel time

Identifiers

PMID41492420
PMCPMC12765187

What OpenQuestion holds

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LicenceCC BY-NC-ND
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.