Evidence map›Paper›PMID 41492414›Full record

ReviewLancet regional health. Americas2026

The right to health: indigenous data sovereignty in Canada during and beyond the COVID-19 pandemic.

Alya Govorchin, Maëve Leduc, Clifford G Atleo, Dawn Hoogeveen, Irina Borgos, Lyana Patrick

Abstract readReview
In one paragraph

Review in Lancet regional health. Americas, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Article
  2. The Right to Be Counted: Unmasking First Nations and Métis Population Undercounts in Winnipeg, Manitoba.International journal of environmental research and public health · 2026
    Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Alya GovorchinFaculty of Health Sciences, Simon Fraser University, BC, Canada.
Maëve LeducFaculty of Health Sciences, Simon Fraser University, BC, Canada.
Clifford G AtleoSchool of Resource and Environmental Management, Simon Fraser University, BC, Canada.
Dawn HoogeveenFaculty of Health Sciences, Simon Fraser University, BC, Canada.
Irina BorgosSchool of Resource and Environmental Management, Simon Fraser University, BC, Canada.
Lyana PatrickFaculty of Health Sciences, Simon Fraser University, BC, Canada.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

The COVID-19 pandemic disproportionately impacted Indigenous Peoples in Canada, highlighting preexisting health inequities. These disparities were exacerbated by inadequate data management policies across Canadian governments, which contribute to inaccurate health information and access challenges for Indigenous Nations. Indigenous data sovereignty, which recognizes the right of Indigenous Peoples to govern their own data, has been identified as essential for achieving self-determination and improving health outcomes. We focus on British Columbia (BC) given its unique health and data governance structure with First Nations. This policy paper examines the challenges related to health data management that arose during COVID-19 in BC, and the regulatory barriers hindering Indigenous health equity. We present four policy recommendations that address data issues as a promising avenue to reducing health inequities in Canada. This includes supporting research by and with Indigenous Peoples, promoting ethical responsibilities of non-Indigenous researchers, implementing anti-racism policies, and adopting Indigenous data management frameworks.

Indexed as

COVID-19Data sovereigntyFirst nationsHealth governanceIndigenousOCAP®Self-determination

Identifiers

PMID41492414
PMCPMC12765168

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.