ArticlePediatric blood & cancer2026
Advice From Adolescents With Cancer, Their Caregivers, and Clinicians on Utilizing and Improving Patient Portals in Adolescent Oncology Care.
Article in Pediatric blood & cancer, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
0 citing papers in PubMed.
No citing paper in PubMed yet.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
8 authors.
Funding
Abstract
backgroundAdolescents with cancer have unique communication needs from other patients with cancer and adolescents without cancer. Electronic health record (EHR) patient portals offer opportunities for communication and health management, but pose challenges in balancing transparency, privacy, and health management. The 21st Century Cures Act amplified these challenges by increasing the availability of health records in patient portals. To inform portal use and policies, we analyzed advice from adolescents with cancer, their parents, and oncology clinicians regarding portal access and use.
methodsWe purposefully sampled adolescents aged 12-17 with cancer and their parents from large academic pediatric oncology centers and used convenience and snowball sampling to recruit clinicians from a national professional group. We conducted semi-structured interviews, descriptively coded transcripts to generate preliminary codes, categorized themes, and applied them across transcripts.
resultsWe interviewed 38 adolescent-parent dyads and 53 clinicians. Interviews revealed agreement and tensions among stakeholders. Participants recommended a standard introduction of the portal, portal modifications to improve users' experiences, and encouraging portal use for health management and communication while maintaining patient access to clinicians. Adolescents and parents suggested clinicians modify notes to have a more hopeful tone. Clinicians favored delayed release of results, while parents preferred immediate release. Adolescents and clinicians encouraged adolescent control over parental proxy access, while parents favored default parental access.
conclusionThis qualitative study provides actionable recommendations for improving portal use, policy, and design for adolescents with cancer. Implementation of these findings and future research can optimize adolescent and caregiver engagement with the portal and portal usability.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.