ArticleTracheostomy (Warrenville, Ill.)2025
The Lived Experience of Individuals with a Tracheostomy and their Caregivers: A Qualitative Analysis.
Article in Tracheostomy (Warrenville, Ill.), 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
1 citing paper in PubMed.
- Advancing Equity in Tracheostomy Care with the Individuals with Disabilities Education Act.Tracheostomy (Warrenville, Ill.) · 2026Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
8 authors.
Funding
Abstract
Objective: To explore the lived experiences of individuals with tracheostomies, their caregivers, and healthcare professionals to identify challenges and inform patient-centered care efforts. Study Design: A qualitative survey with thematic analysis. Setting: Global Tracheostomy Collaborative learning community. Methods: Participants were recruited via a purposive online survey featuring open-ended questions designed to capture diverse stakeholder perspectives. A phenomenological approach within a constructivist-interpretivist paradigm guided the study, employing the International Classification of Functioning framework to examine biopsychosocial dimensions of tracheostomy care. Thematic analysis followed Braun and Clarke's six-phase methodology, with independent coding, iterative refinement, reflexive journaling, triangulation, and peer debriefing. Results: A total of 191 participants from 17 countries contributed to the study, revealing three overarching themes. (1) Tracheostomy as Lifeline and Vulnerability: Participants described tracheostomy as life-saving yet associated with social isolation, communication barriers, stigma, and supply shortages. (2) Dual-Sided Risk Perceptions: Individuals expressed fears about infection risks and stigma, while caregivers and healthcare professionals highlighted concerns about tracheostomy as a potential transmission risk. (3) Disrupted Care and Team Function: Challenges included limited multidisciplinary support, restricted access to critical supplies, and constrained care protocols, which affected patient and caregiver safety and well-being. Conclusion: Tracheostomy patients face compounded vulnerabilities, highlighting the need for holistic, patient-centered care models that address physical, social, and emotional challenges. Inclusive and adaptive healthcare practices are essential to mitigate risks, reduce stigma, and enhance the quality of life for individuals with a tracheostomy and caregivers, especially during healthcare crises.
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Registered trials
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