Evidence map›Paper›PMID 41469052›Full record

ArticleBMJ open2025

Dissemination of study results to participants in mental health research: a meta-research review of studies published in high-impact psychiatry journals.

Georgia Pierson, Elsa-Lynn Nassar, Claire Adams, Jill Boruff, Julia Nordlund, Sophie Hu, Danielle B Rice, Mariana Thombs-Vite, Natalie Co, Vanessa Cook and 1 more

Abstract read
In one paragraph

Article in BMJ open, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors.

Georgia PiersonLady Davis Institute for Medical Research, Montreal, Quebec, Canada.
Elsa-Lynn NassarLady Davis Institute for Medical Research, Montreal, Quebec, Canada.
Claire AdamsLady Davis Institute for Medical Research, Montreal, Quebec, Canada.
Jill BoruffMcGill University Schulich Library of Physical Sciences Life Sciences and Engineering, Montreal, Quebec, Canada.
Julia NordlundLady Davis Institute for Medical Research, Montreal, Quebec, Canada.
Sophie HuLady Davis Institute for Medical Research, Montreal, Quebec, Canada.
Danielle B RiceDepartment of Psychology, St Joseph's Healthcare Hamilton, Hamilton, Ontario, Canada.ORCID http://orcid.org/0000-0001-5615-7005
Mariana Thombs-ViteLady Davis Institute for Medical Research, Montreal, Quebec, Canada.
Natalie CoLady Davis Institute for Medical Research, Montreal, Quebec, Canada.
Vanessa CookLady Davis Institute for Medical Research, Montreal, Quebec, Canada.
Brett D ThombsLady Davis Institute for Medical Research, Montreal, Quebec, Canada brett.thombs@mcgill.ca.ORCID http://orcid.org/0000-0002-5644-8432

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectivesWe surveyed authors of publications in high-impact psychiatry journals to assess the (1) proportion that disseminated results to study participants or others with lived experience, and, among those who disseminated, (2) methods (eg, email) and (3) tools (eg, plain-language summary) used.

designMeta-research review. DATA SOURCE: PubMed search on 14 December 2022 and emails to study authors for information on dissemination. ELIGIBILITY CRITERIA: Eligible studies collected primary human data and were published in psychiatry journals with 2021 impact factor ≥10. DATA EXTRACTION AND SYNTHESIS: Study information was extracted by one investigator and validated by a second investigator, with conflicts resolved by consensus, with a third investigator consulted as necessary. We emailed authors approximately 2 years post-publication to ensure sufficient time had passed to share results. We estimated the proportion of authors that may have disseminated results to participants or others with lived experience, assuming that non-respondents (1) did not disseminate, (2) were half as likely to disseminate as respondents or (3) disseminated in the same proportion as respondents.

resultsOf 141 studies, 94 (67%) authors responded. Among respondents, 21 (22%) reported disseminating to study participants, and an additional 9 (10%) reported disseminating lay materials to people with lived experience (total of 30 studies, 32%). Overall, we estimated that 15% (95% CI 10% to 22%) to 23% (95% CI 17% to 30%) of authors may have disseminated results directly to study participants and 21% (95% CI 15% to 29%) to 32% (95% CI 25% to 40%) to participants or others with lived experience. Among the 30 that reported disseminating, the most common methods were sending mail or emails to study participants (17 studies, 57%) and posting on social media (15 studies, 50%). The most common tools were plain-language summaries (22 studies, 73%) and webinars or other meetings (15 studies, 50%).

conclusionsDissemination of results to participants in mental health research is uncommon. Funding agencies, ethics committees, journals and academic institutions should support dissemination.

Indexed as

Biomedical ResearchInformation DisseminationMental HealthPeriodicals as TopicPsychiatryHumansJournal Impact FactorETHICS (see Medical Ethics)MethodsPSYCHIATRY

Identifiers

PMID41469052
PMCPMC12750758

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.