Evidence map›Paper›PMID 41469044›Full record

Trial reportBMJ open2025

Perspectives of parents/caregivers prior to a pilot intervention trial to improve transition to adult care for adolescents with type 1 diabetes: A qualitative study.

Kenzie Tapp, Elise Mok, Dawn Davis, Sylvia Guérin-Marion, Jennifer Frei, Michele Gibbon, Melanie Henderson, Melissa Miljanovski, Deborah Da Costa, Rayzel Shulman and 2 more

Registry-linked trialAbstract readRandomized Controlled Trial
In one paragraph

Trial report in BMJ open, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT05445284 (Group Education Trial to Improve Transition for Parents of Adolescents With Type 1 Diabetes), which is not on this map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT05445284 naactive not recruitingnot on this map

Group Education Trial to Improve Transition for Parents of Adolescents With Type 1 Diabetes: A Pilot Randomized Controlled, Superiority Trial (GET-IT For Parents)

TypeinterventionalSponsorMcGill University Health Centre/Research Institute of the McGill University Health CentreRan2023 to 2026Enrolled34ConditionsDiabetes Mellitus, Diabetes Mellitus, Type 1, Glucose Metabolism Disorders, Metabolic DiseaseArmsGroup education sessions for parents plus usual diabetes care, Usual diabetes care
3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors.

Kenzie TappDepartment of Psychology, University of Windsor Faculty of Arts and Social Sciences, Windsor, Ontario, Canada tappk@uwindsor.ca.ORCID http://orcid.org/0000-0002-1839-3151
Elise MokCentre for Outcomes Research and Evaluation, Research Institute of the McGill University Health Centre, Montreal, Québec, Canada.
Dawn DavisDepartment of Social Services, Montreal Children's Hospital, McGill University Health Center, Montreal, Québec, Canada.
Sylvia Guérin-MarionDepartment of Psychoeducation, Montreal Children's Hospital, McGill University Health Center, Montreal, Québec, Canada.
Jennifer FreiCentre for Outcomes Research and Evaluation, Research Institute of the McGill University Health Centre, Montreal, Québec, Canada.
Michele GibbonCentre for Outcomes Research and Evaluation, Research Institute of the McGill University Health Centre, Montreal, Québec, Canada.
Melanie HendersonDivision of Endocrinology, CHU Sainte-Justine, Montreal, Québec, Canada.ORCID http://orcid.org/0000-0002-0102-2389
Melissa MiljanovskiDepartment of Psychology, University of Windsor Faculty of Arts and Social Sciences, Windsor, Ontario, Canada.
Deborah Da CostaCentre for Outcomes Research and Evaluation, Research Institute of the McGill University Health Centre, Montreal, Québec, Canada.
Rayzel ShulmanDivision of Endocrinology, The Hospital for Sick Children, Toronto, Ontario, Canada.
Meranda NakhlaCentre for Outcomes Research and Evaluation, Research Institute of the McGill University Health Centre, Montreal, Québec, Canada.ORCID http://orcid.org/0000-0001-5833-5303
Jessica KichlerDepartment of Psychology, University of Windsor Faculty of Arts and Social Sciences, Windsor, Ontario, Canada.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

To help mitigate potential complications often experienced by adolescents with type 1 diabetes (T1D) during the transition to adult healthcare, transition care programs aim to provide developmentally appropriate healthcare, promote adolescent decision-making and self-care skills, and prepare adolescents for adult diabetes care. However, there is limited research considering parent/caregiver needs during the transition preparation process for adolescents with T1D.

objectiveTo identify parent/caregiver perspectives prior to taking part in a transition care intervention involving group education sessions and peer support for parents/caregivers of adolescents with T1D. DESIGN AND

settingPre-intervention, semi-structured interviews were conducted with parents/caregivers of adolescents (14-16 years) with T1D followed in a tertiary care paediatric diabetes clinic and participating in a pilot, randomised controlled trial: The Group Education Trial to Improve Transition for Parents/Caregivers of Adolescents with T1D (ClinicalTrials.gov ID: NCT05445284). We conducted a reflexive thematic analysis to identify key aspects of the intervention that may help support parents/caregivers of adolescents with T1D during their transition to adult care.

participantsOf the 17 parents/caregivers randomized to the intervention group, 13 completed pre-intervention interviews.

resultsFour themes were generated from the parents/caregivers, including (1)

conclusionsThe findings provide practical and pragmatic suggestions to refine the parent/caregiver-based transition of care intervention for a future, full-scale trial, including addressing parental/caregiver needs as they learn how to best support their adolescent with T1D during transition to adulthood. Future transition programmes for adolescents with T1D may also benefit by incorporating aspects of the current transition readiness program for parents/caregivers of adolescents with T1D.

Indexed as

CaregiversDiabetes Mellitus, Type 1ParentsTransition to Adult CareAdolescentAdultFemaleHumansInterviews as TopicMalePilot ProjectsQualitative ResearchSelf CareAdolescentsCaregiversPaediatric endocrinologyParentsQUALITATIVE RESEARCH

Identifiers

PMID41469044
PMCPMC12750754

What OpenQuestion holds

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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.