Evidence map›Paper›PMID 41466257›Full record

ArticleBMC palliative care2025

Cancer treatment shared decision-making and coping during the COVID-19 pandemic (CAN-DECIDE): a mixed-methods study.

Rebecca A Aslakson, Rachel Siden, Laura M Holdsworth, Kathryn Colborn, Mae Verano, Bonnie Odelia Wong, Fabian Johnston, Richard Nudotor, Amn Siddiqi, Elizabeth Rickerson and 8 more

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in BMC palliative care, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

18 authors.

Rebecca A AslaksonDepartment of Anesthesiology, Larner College of Medicine at the University of Vermont, 111 Colchester Ave., West Pavilion 2-240, Burlington, VT, USA. Rebecca.Aslakson@uvmhealth.org.
Rachel SidenDepartment of Medicine, Stanford School of Medicine, Stanford, CA, USA.
Laura M HoldsworthDepartment of Medicine, Stanford School of Medicine, Stanford, CA, USA.
Kathryn ColbornDepartment of Medicine, University of Colorado Anschutz Medical Campus, Aurora, CO, USA.
Mae VeranoDepartment of Medicine, Stanford School of Medicine, Stanford, CA, USA.
Bonnie Odelia WongDepartment of Surgery, Brigham and Women's Hospital, Boston, MA, USA.
Fabian JohnstonDepartment of Surgery, Johns Hopkins Medical Institutions Campus, Baltimore, MD, USA.
Richard NudotorDepartment of Surgery, Johns Hopkins Medical Institutions Campus, Baltimore, MD, USA.
Amn SiddiqiDepartment of Surgery, Johns Hopkins Medical Institutions Campus, Baltimore, MD, USA.
Elizabeth RickersonDepartment of Psychosocial Oncology and Palliative Care, Dana-Farber Cancer Institute, Boston, MA, USA.
Caroline HollahanDepartment of Psychosocial Oncology and Palliative Care, Dana-Farber Cancer Institute, Boston, MA, USA.
Bridget FahyDepartment of Surgery, Divisions of Surgical Oncology and Palliative Medicine, University of New Mexico, Albuquerque, NM, USA.
Isaac LiraClinical Research Department, University of New Mexico Comprehensive Cancer Center, Albuquerque, NM, USA.
Brittany WatermanDepartment of Internal Medicine, Division of Palliative Medicine, Ohio State University Wexner Medical Center, Columbus, OH, USA.
Kemba JohnsonClinical Research Center, Ohio State University Wexner Medical Center, Columbus, OH, USA.
Shelley Fuld NassoNational Coalition for Cancer Survivorship, Silver Spring, MD, USA.
Holly TaborDepartment of Medicine, Stanford School of Medicine, Stanford, CA, USA.
Lidia SchapiraStanford Cancer Institute, Stanford, CA, USA.

Funding

Patient-Centered Outcomes Research Institute IHS 1609-36518
6 · The paper itself

Abstract

backgroundWe hypothesized that cancer patients, their family members, and cancer and palliative care practitioners were experiencing significant COVID-related stress and changes to cancer care and sought to characterize contributing factors.

methodsWe completed a mixed methods study to explore cancer care-related experiences during the COVID-19 pandemic of cancer patients, family members, and cancer and palliative care practitioners. Participants were recruited from an ongoing clinical trial.

resultsPatients were pursuing curative-intent surgeries for upper gastrointestinal cancers. Between October 2020 and July 2021, we collected 491 surveys from 181 cancer patients and 26 family caregivers and conducted 71 in-depth interviews with 48 cancer patients, 6 family caregivers, and 19 practitioners. Patient-reported quality-of-life measurements were not associated with a corresponding COVID surge. Patients and caregivers were generally satisfied with their care, trusted providers, and were often unaware of pandemic-related changes. In contrast, practitioners reported significant pandemic-related changes to cancer care delivery with associated practitioner anxiety, fatigue, and moral distress. All felt that visitor restrictions negatively impacted care.

conclusionsOur data suggest that cancer patients coped well overall despite pandemic-related disruptions whereas cancer care clinicians experienced significant stress. These findings can inform future disaster-preparedness planning and policy-setting in institutions providing cancer care.

Indexed as

Adaptation, PsychologicalCOVID-19Decision Making, SharedNeoplasmsAdultAgedCaregiversFemaleHumansMaleMiddle AgedPalliative CarePandemicsQualitative ResearchQuality of LifeSurveys and QuestionnairesBurnoutCancerCancer careCOVIDCOVID-19Palliative careQuality of life

Identifiers

PMID41466257
PMCPMC12750573

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.