Evidence map›Paper›PMID 41461575›Full record

ArticlePsycho-oncology2026

The Impact of Self-Directed Aftercare Following Breast Cancer Surgery: A Scoping Review.

Anna T Isaac, Olinda Santin, Gareth W Irwin, Katherine Mankelow, Louise V Cousins, Stuart A McIntosh

Abstract readScoping Review
In one paragraph

Article in Psycho-oncology, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Anna T IsaacJohnston Centre for Cancer Research, Queen's University Belfast, Belfast, UK.ORCID https://orcid.org/0000-0002-6071-2101
Olinda SantinSchool of Nursing and Midwifery, Queen's University Belfast, Belfast, UK.
Gareth W IrwinDepartment of Breast Surgery, Belfast City Hospital, Belfast, UK.
Katherine MankelowSchool of Nursing and Midwifery, Queen's University Belfast, Belfast, UK.
Louise V CousinsDepartment of Breast Surgery, Belfast City Hospital, Belfast, UK.ORCID https://orcid.org/0009-0008-3288-7917
Stuart A McIntoshJohnston Centre for Cancer Research, Queen's University Belfast, Belfast, UK.

Funding

Public Health Authority EAT/5741/22
6 · The paper itself

Abstract

purposeWith over 56,000 new cases of breast cancer a year in the UK and 76% of these expected to live beyond 10 years, managing long-term care and support is an urgent challenge. This scoping review aims to map the current literature on outcomes and lived experience of Self-Directed Aftercare (SDA) pathways following breast cancer surgery. We aim to assess what evidence exists to support the current delivery of this approach.

methodsA scoping review in line with the PRISMA-ScR template was undertaken across 3 databases (Web of Science, PubMED and OVID Medline) using an iteratively developed search strategy based on concepts of "breast cancer", "self-directed" and "aftercare". Screening was undertaken by all authors and disagreements settled by team discussion. Key data were extracted from qualitative and quantitative studies, with descriptive statistical and thematic analysis conducted.

conclusionsAvailable literature is sparse and of variable quality. While reductions in clinic attendance are reported, there is a wide range of patient lived experience. There are positive reports of the convenience of SDA, while negative aspects included unmet psychological and information needs, which also changed over time. Ease of access to speciality breast advice varied across studies. IMPLICATIONS FOR CANCER SURVIVORS: Globally more patients are being managed via SDA, but this review demonstrates the lack of research assessing the safety, acceptability, and cost-effectiveness of this approach. It is imperative that services address the evolving needs of breast cancer survivors and integrate feedback from patients with lived experience of breast cancer aftercare. TRAIL REGISTRATION: This project has been publicly registered with the Open Science Framework (July 2024). It can be found under the project "Exploring oncological outcomes and lived experiences of patients and their carers managed via self-directed aftercare pathways following breast cancer surgery" available at https://osf.io/b56vq/.

Indexed as

AftercareBreast NeoplasmsCancer SurvivorsSelf CareFemaleHumans

Identifiers

PMID41461575
PMCPMC12747846

What OpenQuestion holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.