ArticlePLOS global public health2025
"…I feel like I am just staying here waiting for death": A qualitative study of the lived experiences of people with advanced illness in refugee settlements in Uganda.
Article in PLOS global public health, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
1 citing paper in PubMed.
- Palliative care in humanitarian responses.Bulletin of the World Health Organization · 2026Article
Corrections and comments
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Authors and funding
17 authors.
Funding
Abstract
Refugees and migrants with advanced illness frequently face fragmented and inconsistent access to health services. Structural barriers delay symptom management, undermine continuity of care, and limit access to palliative support. A clearer understanding of their lived experiences is essential to inform equitable health system responses and inclusive models of care. This study explored the lived experiences of individuals with advanced illness in three refugee settlements in Uganda to identify contextually grounded strategies for improving access to and delivery of palliative care. In-depth semi-structured interviews were conducted with 44 purposively sampled refugees living with advanced illnesses, reflecting varied conditions, ages, and care experiences. A descriptive phenomenological approach combined with reflexive thematic analysis was used to identify key patterns and meanings related to illness experiences and care access. Participants' pre-displacement contexts-often characterised by traumatic events-intensified current physical and psychological symptoms. A recurring theme was the loss of ability to care for their families due to declining health and limited functional capacity within the settlement. Unmet basic needs and restricted access to health services further hindered effective illness management. Displacement, trauma, and scarce resources collectively undermined health and wellbeing. Displaced individuals with advanced illness in Uganda face severe and interconnected challenges, including inconsistent access to healthcare, unmet psychosocial and spiritual needs, and limited support from non-governmental organisations (NGOs) and palliative care services. Culturally responsive, community-engaged strategies coordinated across humanitarian and national systems are urgently needed to address the multifaceted needs of this population in a coordinated and sustainable way.
Identifiers
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.