Evidence map›Paper›PMID 41460569›Full record

ArticleJournal of autism and developmental disorders2025

Preliminary Efficacy of Telehealth Family Navigation for Early Autism Services Access.

Katharine E Zuckerman, Michelle Owens Reinitz, Mohadeseh Solgi, Alicia Feryn, Michelle Tae, Patricia Cavanaugh, Joseline Raja-Vora, Eric Fombonne

Registry-linked trialAbstract read
In one paragraph

Article in Journal of autism and developmental disorders, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT04861740 (Autism Access Link for Early Referral and Treatment), which is not on this map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT04861740 nacompletednot on this map

Autism Access Link for Early Referral and Treatment

TypeinterventionalSponsorOregon Health and Science UniversityRan2020 to 2024Enrolled148ConditionsAutism Spectrum DisorderArmsAutism ALERT, Screening Intervention
3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Katharine E ZuckermanDivision of General Pediatrics, Oregon Health and Science University, 707 SW Gaines Rd., Mail Code CDRC-P, Portland, OR, 97212, USA. zuckerma@ohsu.edu.ORCID http://orcid.org/0000-0003-0979-3740
Michelle Owens ReinitzDivision of General Pediatrics, Oregon Health and Science University, 707 SW Gaines Rd., Mail Code CDRC-P, Portland, OR, 97212, USA.ORCID http://orcid.org/0009-0003-2933-3909
Mohadeseh SolgiDivision of General Pediatrics, Oregon Health and Science University, 707 SW Gaines Rd., Mail Code CDRC-P, Portland, OR, 97212, USA.ORCID http://orcid.org/0000-0002-0972-6030
Alicia FerynBiostatistics and Design Program, Oregon Health and Science University, Portland, OR, USA.ORCID http://orcid.org/0000-0002-0066-606X
Michelle TaeHelp Me Grow, Providence Swindells Center, Portland, OR, USA.
Patricia CavanaughHelp Me Grow, Providence Swindells Center, Portland, OR, USA.
Joseline Raja-VoraHelp Me Grow, Providence Swindells Center, Portland, OR, USA.ORCID http://orcid.org/0000-0002-3003-1735
Eric FombonneInstitute on Development and Disability, Oregon Health and Science University, Portland, OR, USA.ORCID http://orcid.org/0000-0002-8605-3538

Funding

EXITO: Enhancing Cross-disciplinary Infrastructure and Training at OregonRL5GM118963 · NIGMS · PORTLAND STATE UNIVERSITY · PI KELLER, THOMAS E · 2015 to 2023
$11.9M
EXITO: Enhancing Cross-disciplinary Infrastructure and Training at OregonTL4GM118965 · NIGMS · PORTLAND STATE UNIVERSITY · PI KELLER, THOMAS E · 2015 to 2022
$10.1M
Autism Access Link for Early Referral and TreatmentR34MH120184 · NIMH · OREGON HEALTH & SCIENCE UNIVERSITY · PI ZUCKERMAN, KATHARINE ELIZABETH · 2019 to 2021
$724k
Genentech Foundation G-89149NIGMS NIH HHS 5TL4GM118965NIGMS NIH HHS RL5 GM118963NIGMS NIH HHS RL5GM118963NIGMS NIH HHS TL4 GM118965NIMH NIH HHS R34 MH120184NIMH NIH HHS R34MH120184
6 · The paper itself

Abstract

purposeIn-person family navigation accelerates autism diagnosis; however, effectiveness of telehealth autism navigation is unknown. This study tested preliminary efficacy of telehealth autism navigation.

methodIn this site-randomized pilot trial of telehealth autism family navigation, 7 clinics (66 primary care providers) were trained in autism screening and randomized to family navigation versus usual care. 49 children aged 12-54 months enrolled. We used Early Intervention/Early Childhood Special Education (EI/ECSE) and health records to compare navigation intervention and control arms on time from enrollment to EI/ECSE eligibility determination, percent receiving EI/ECSE eligibility determination within 6 months, percent of children receiving EI/ECSE referrals within 6 months, and percent receiving autism educational and medical diagnoses within 6 months.

resultsIn intention-to-treat analysis, 46.7% of the navigation (66.7% of those referred to EI/ECSE) and 36.8% of control families (87.5% of those referred to EI/ECSE) had EI/ECSE eligibility determinations. Median time to EI/ECSE eligibility determination was 66.5 days in navigation and 120 days in control. 70% of navigation and 42.1% of control children were referred to EI/ECSE. 23.8% of navigation and 0% of control children received an autism educational eligibility within 6 months, but 10% of navigation children versus 42.1% of control had autism medical diagnostic determination within 6 months. 50% of the navigation arm had < 4 navigator interactions.

conclusionTelehealth family navigation shows preliminary promise for improving access to services in EI/ECSE, especially for referral and evaluation. Access to medical diagnostic evaluation may need additional support. A larger trial can investigate longer-term services receipt. CLINICALTRIALS: GOV ID: NCT04861740, Registered 4/7/2021.

Indexed as

AutismEarly identificationNavigationRandomized trialTelehealth

Identifiers

PMID41460569
PMCPMC12863467

What OpenQuestion holds

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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.