SynthesisBMC palliative care2025
Exploring the experiences of neonatal parents for neonatal palliative care: a meta-synthesis of qualitative research.
Synthesis in BMC palliative care, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
0 citing papers in PubMed.
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Corrections and comments
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Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundNeonatal palliative care (NPC) represents a deeply emotional and ethically complex experience for families confronting the anticipated or actual loss of an infant. Although the clinical dimensions of NPC are increasingly acknowledged, there remains a lack of comprehensive synthesis regarding how parents perceive and construct meaning from this profoundly distressing journey.
aimThis study aims to synthesize qualitative evidence on parental experiences during neonatal palliative care, with a focus on their emotional responses, decision-making processes, sources of support, and pathways to adaptation and meaning reconstruction.
designThis study constituted a systematic review and meta-synthesis of qualitative research. DATA SOURCES: A comprehensive search was conducted across nine electronic databases from their inception to November 2024, including PubMed, Web of Science, PsycINFO, Embase, CINAHL, CNKI, WanFang Data, VIP, and the Chinese Biomedical Literature Service System. Qualitative studies examining the experiences of parents who received neonatal palliative care were selected for synthesis. REVIEW
methodsTwo reviewers independently screened articles, extracted data, and appraised methodological quality using the Joanna Briggs Institute (JBI) checklist. Thematic synthesis was performed using synthesis techniques.
resultsTwelve studies met inclusion criteria. Five overarching themes were identified: parent-infant bonding, decision-making dilemmas, emotional struggles, the role of professional support, and the dynamics of support networks.
conclusionParents' experiences in NPC are shaped by profound emotional struggles and the presence or absence of empathic, informative, and respectful communication. Peer and professional support systems play a critical role in facilitating emotional processing and post-traumatic growth. Enhancing communication training and integrating peer support programs into NICU settings may help meet the psychological needs of bereaved parents.
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