Evidence map›Paper›PMID 41456972›Full record

ArticleJournal of the National Medical Association2026

Mental health challenges associated with sickle cell disease and strategies to address them: Reflections from a community input panel.

Adedotun Adeyokunnu, Heather Avant, Steven Hardy, Carolyn Rowley, Carley Cole-Cavins, Titilope Fasipe, LaTonya Kittles, Victoria H Coleman-Cowger

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Journal of the National Medical Association, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Adedotun AdeyokunnuSikcell, Philadelphia, PA 19405, USA.
Heather AvantArtfully Avant, LLC, 3217 Concord Dr, Mesquite, TX 75150, USA.
Steven HardyCenter for Cancer and Blood Disorders, Children's National Hospital, 111 Michigan Ave., NW, Washington, DC 20010, USA.
Carolyn RowleyCayenne Wellness Center, 205 S. Flower St., Burbank, CA 91502, USA.
Carley Cole-CavinsCleverly Changing, LLC 14280 Baltimore Ave #1038, Laurel, MD 20707, USA.
Titilope FasipeDepartment of Pediatrics, Section of Hematology-Oncology, Baylor College of Medicine, Texas Medical Center, 6701 Fannin St., Houston, TX 77030, USA.
LaTonya KittlesPR Strategists, LLC, Columbia, MD 20145, USA.
Victoria H Coleman-CowgerThe Emmes Company, LLC, 401 N. Washington Street, Suite 700, Rockville, MD 20850, USA. Electronic address: vcolemancowge@emmes.com.

Funding

Sickle Cell Disease Cure Initiative (SCDC)OT2HL142340 · NHLBI · THE EMMES COMPANY, LLC · PI COLEMAN-COWGER, VICTORIA HOPE · 2017 to 2024
$18.3M
NHLBI NIH HHS OT2 HL142340
6 · The paper itself

Abstract

Despite advances in treatment, the mental health challenges of individuals living with Sickle Cell Disease (SCD) remain critically overlooked. Depression, anxiety, and post-traumatic stress disorder disproportionately affect this population, yet mental health support is often inadequate or absent. This paper presents patient-driven insights into the psychological toll of SCD, emphasizing the urgent need for integrated care approaches that address both physical and mental health. By exploring barriers to mental health access, the impact of medical trauma, and strategies for resilience, we aim to shift the conversation toward a more holistic, patient-centered model of SCD care.

Indexed as

Anemia, Sickle CellMental HealthAnxietyDepressionHealth Services AccessibilityHumansMental Health ServicesStress Disorders, Post-TraumaticMental healthPatient perspectiveResilienceSickle cell disease (SCD)

Identifiers

PMID41456972
PMCPMC12752931

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.